On 2 June, an article discussing “National and international models of involving people with lived experience in dementia policy, advocacy and research” was published in Frontiers in Dementia.
Globally, there is growing recognition of the need to advance approaches to involve people with lived experience of dementia as collaborators in policy, advocacy and research activities. Involvement is viewed as a right by dementia advocates and others, and some organisations have developed mechanisms to support this collaboration, such as through dedicated resources for infrastructure or as a condition of research funding. However, there is limited literature on how national and international organisations support the involvement of people with lived experience of dementia. In this perspective article, the authors describe different approaches to involving people with lived experience in policy, advocacy and research activities across national and international network contexts. They outline and compare the approaches taken by the Engagement of People with Lived Experience of Dementia program and advisory group (Canadian Consortium on Neurodegeneration in Aging), Alzheimer Society Research Network (Alzheimer’s Society UK), European Working Group of People With Dementia (EWGPWD) and European Dementia Carers Working Group (Alzheimer Europe), and the Lived Experience Advisory Group (Global Brain Health Institute, Trinity College Dublin).
Among the authors are Sarah Campill, Public Involvement Officer at Alzheimer Europe, and Jan Runar Eliassen, member of the EWGPWD.
Read the article, here: https://www.frontiersin.org/journals/dementia/articles/10.3389/frdem.2026.1816031/full
