Resources to support people with dementia and carers, during the ongoing war in Ukraine

In order to support people with dementia and carers, during the ongoing war in Ukraine, Alzheimer Europe has put together a range of online resources with information and guidance:

National support and information in Ukraine

International support and information

Support from Ukraine's neighbours and other countries

We will continue to closely monitor the situation and also include relevant news developments for people with dementia and their carers in our news:

https://www.alzheimer-europe.org/news

 

 

National support and information in Ukraine

Kyiv City Council

Kyiv City Council - Advice for people with disabilities in case of emergency: https://kyivcity-gov-ua.translate

Fight For Right

Fight For Right - Resources for emergency preparedness, planning and evacuation (Ukrainian People with Disabilities in Crisis): https://eng.ffr.org.ua/

 

 

International support and information

AGE Platform Europe

Statement by AGE Platform Europe, concerning the war in Ukraine: https://www.age-platform.eu/policy-work/news/we-express-our-solidarity-ukrainian-people-name-democracy-rule-law-and-peace

Update given by AGE Platform Europe, concerning the plight of older people during the war in Ukraine: https://www.age-platform.eu/special-briefing/ukraine-%E2%80%98oldest%E2%80%99-humanitarian-crisis-world

Alzheimer’s Disease International

Alzheimer’s Disease International has produced a really useful report entitled “Forgotten in a crisis” which highlights how dementia should be prioritised during humanitarian crises:

https://www.alzint.org/resource/forgotten-in-a-crisis-addressing-dementia-in-humanitarian-response/

Information cards on how to support people living with dementia and their carers during the war in Ukraine:

https://www.alzint.org/resource/advice-for-carers-humanitarian-agencies-communities-and-people-living-with-dementia-during-times-of-crisis/

Dementia Australia

Information about dementia, in Ukrainian language: https://www.dementia.org.au/resources/ukrainian

European Disability Forum

European Disability Forum - Inclusive emergency response: https://www.edf-feph.org/inclusive-emergency-response/

Global Protection Cluster

Global Protection Cluster - Protection of persons with disabilities in Ukraine: https://www.globalprotectioncluster.org/field-support/field-protection-clusters/ukraine/

Inter-Agency Standing Committee (IASC)

Inter-Agency Standing Committee (IASC) - Guidelines on mental health and psychosocial support in emergency settings: https://interagencystandingcommittee.org/

International Psychogeriatric Association and World Psychiatric Association

Statement by International Psychogeriatric Association and World Psychiatric Association, concerning the war in Ukraine: https://www.ipa-online.org/news-and-issues/statement-on-ukraine

mhGAP Humanitarian Intervention Guide

mhGAP Humanitarian Intervention Guide (mhGAP-HIG) - Clinical management of mental, neurological and substance use conditions in humanitarian emergencies:

http://apps.who.int/iris/bitstream/handle/10665/162960/9789241548922_eng.pdf?sequence=1

UNHCR

Information on the Ukraine situation: https://help.unhcr.org/ukraine/information-on-the-situation-in-ukraine/

Refugee Response Plan: https://reporting.unhcr.org/ukraine-situation-rrp-summary

UN Office for Coordination of Humanitarian Affairs

Situation reports from UN Office for Coordination of Humanitarian Affairs (UN OCHA): https://www.unocha.org/ukraine

World Health Organization

The World Health Organization is following the situation very closely, especially how the war affects elderly people in general and people with dementia in particular. The IASC MHPSS Reference Group (network of UN agencies and partner organisations working in humanitarian settings to coordinate large-scale emergency responses on the ground and develop new guidance/tools, has written a summary document with materials and resources available in relevant languages for the immediate response when setting up humanitarian support:

https://interagencystandingcommittee.org/iasc-reference-group-mental-health-and-psychosocial-support-emergency-settings/mental-health-and-psychosocial-support-humanitarian-response-ukraine-and-neighbouring-countries

The WHO publishes a weekly situation report on Ukraine: https://www.who.int/emergencies/situations/ukraine-emergency

Other entities

Roche

Roche has sent us the following message and useful information:

We understand the concern felt by patients and are doing everything we can to provide ongoing access to Roche medicines and diagnostics both in and outside Ukraine.
We currently have sufficient products in Ukraine but are hindered by the severe destruction of local infrastructure, and disruption to logistics and supply chain channels. We are doing all we can to ensure products reach centres that remain able to provide care and are seeking alternative means of distribution for individual patients where this is not the case.
With regards to displaced persons or refugees, a number of neighbouring countries have confirmed they will be eligible for the same access to healthcare as local citizens. We are working with healthcare providers in these countries to ensure sufficient supply is available.
Additionally, we are in contact with specialist centres to identify sites that have capacity to take on the care of patients who have been participating in clinical studies.
We have established a global toll-free hotline number and invite clinical trial participants, patients that are receiving a Roche drug, clinical trial investigators or coordinators, and healthcare providers to call. The team will do its best to provide everyone who is in need with the appropriate information and support.
The hotline is available in multilingual and can be reached on the following number:  +36 146 182 58.
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For SMS/Whatsapp (translated into local languages):
Roche has established a global toll-free hotline number( tel: +36 146 182 58) for patients and healthcare providers in or from Ukraine. Please share this information with those who need it.
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For Roche websites (global and local)

We have established a global hotline (tel: +36 146 182 58) for patients and healthcare providers in or from Ukraine. We will do our best to provide everyone who is in need with the appropriate information and support.

 

 

Support from Ukraine's neighbours and other countries

Czech Alzheimer Society

The Czech Alzheimer Society has produced a number of leaflets in Czech, English and Ukrainian about medical help for people with dementia who have fled from Ukraine. See PDF download at end of this page.

Hungary National Directorate-General for Aliens Policing - Information for people fleeing Ukraine

http://www.bmbah.hu/

Luxembourg

Temporary FNR support for Researchers who have fled the war in Ukraine | FNR – Luxembourg National Research Fund

Moldova Bureau for Migration & Asylum

http://bma.gov.md/en

Polish Ministry of the Interior and Administration - information for refugees

https://www.gov.pl/web/mswia-en/information-for-refugees-from-ukraine

Romanian National Council for Refugees

https://www.cnrr.ro/index.php/ro/

Slovakia Ministry of the Interior, Migration Office

https://ua.gov.sk/en.html
https://www.ukraineslovakia.sk/