2024
Rosenberg A, Untersteiner H, Guazzarini AG, Bödenler M, Bruinsma J, (.../...) Diaz A et al. (2024). A digitally supported multimodal lifestyle program to promote brain health among older adults (the LETHE randomized controlled feasibility trial): study design, progress, and first results. Alz Res Therapy. 21;16(1):252. DOI: 10.1186/s13195-024-01615-4
Moll Van Charante E, Hoevenaar-Blom MP, Song M, Andrieu S, Coley N, Georges J et al. (2024). Prevention of dementia using mobile phone applications (PRODEMOS): a multinational randomised controlled effectiveness-implementation trial. European Heart Journal. Oct 28;45(Supplement_1):ehae666.3555. DOI: 10.1093/eurheartj/ehae666.3555
Giebel C, Silva-Ribeiro W, Watson J, Volkmer A, Chirico I, Diaz A et al. (2024). A Systematic Review on the Evidence of Misdiagnosis in Dementia and Its Impact on Accessing Dementia Care. International Journal of Geriatric Psychiatry. 39 (10):e6158. DOI: 10.1002/gps.6158
Alzheimer Europe (2024). Leitlinien für eine ethische und inklusive Kommunikation über Alzheimer und andere Formen von Demenz und die Darstellung von Menschen mit Demenz. ISBN 978-2-919811-19-9, Luxembourg, Alzheimer Europe - translated by Alzheimer Schweiz Suisse Svizzera.
Erdemli G, Grammatikopoulou M, Wagner B, Vairavan S, Curcic J, (.../...) Gove D, Diaz-Ponce A et al. (2024). Regulatory considerations for developing remote measurement technologies for Alzheimer’s disease research. npj Digital Medicine. September;4;7(1):232. DOI: 10.1038/s41746-024-01211-8
Alzheimer Europe (2024). Pohlaví, gender a sexualita v kontextu demence: Příručka pro zvyšování povědomí pracovníků a pracovnic ve zdravotnictví a sociálních službách. ISBN 978-2-919811-17-5, Luxembourg, Alzheimer Europe - translated by Česká alzheimerovská společnost and Freya, z. s. - Institut sexuality a vztahů
Van Charante EPM, Hoevenaar-Blom MP, Song M, Andrieu S, Barnes L, Birck C (.../...) Georges J et al. (2024). Prevention of dementia using mobile phone applications (PRODEMOS): a multinational, randomised, controlled effectiveness–implementation trial. The Lancet Healthy Longevity. 2024 May;S2666756824000680. DOI: 10.1016/S2666-7568(24)00068-0
Giebel C, Harding E, Volkmer A, Chirico I, Hopper L (.../...) Diaz-Ponce A, Gove D et al. (2024). The landscape of inequalities in dementia across Europe: First insights from the INTERDEM taskforce. Int J Geriat Psychiatry. 39(5):e6096. DOI: 10.1002/gps.6096
Bruinsma J, Visser L, Abaci A, Rosenberg A, Diaz A et al. (2024). Social activities in multidomain dementia prevention interventions: Insights from practice and a blueprint for the future. Frontiers in Psychiatry. DOI: 10.3389/fpsyt.2024.1386688
Roeser J, Bayliss N, Blom M, Croney R, Lanman L (.../...) Georges J. (2024). Insights and recommendations for working collaboratively and improving care in Alzheimer’s disease: Learnings from the Finding Alzheimer’s Solutions Together (F.A.S.T.) Council. Health Expectations. 2024 Apr;27(2):e14040. DOI: 10.1111/hex.14040
Monnet F, Diaz A, Gove D, Dupont C, Pivodic L, Van Den Block L. (2024). The perspectives of people with dementia and their supporters on advance care planning: A qualitative study with the European Working Group of People with Dementia. Palliative Medicine. 38(2):251–63 DOI: 10.1177/02692163231219915
Bradshaw AC, Georges J. & Alzheimer Europe Board (2024). Anti-Amyloid Therapies for Alzheimer’s Disease: An Alzheimer Europe Position Paper and Call to Action. The Journal of Prevention of Alzheimer's Disease. DOI: 10.14283/jpad.2024.37
Frisoni G, Festari C, Massa F, Cotta Ramusino M, Orini S (.../...) Georges J (.../...) et al. (2024). European intersocietal recommendations for the biomarker-based diagnosis of neurocognitive disorders. The Lancet Neurology. DOI: 10.1016/S1474-4422(23)00447-7
Haraldsen IH, Hatlestad-Hall C, Marra C, Renvall H, Maestú F (.../...) Birck C (.../...) Diaz A (.../...) Georges J (.../...) Gove D et al. (2024). Intelligent digital tools for screening of brain connectivity and dementia risk estimation in people affected by mild cognitive impairment: the AI-Mind clinical study protocol. Frontiers in Neurorobotics. 17:1289406. DOI: 10.3389/fnbot.2023.1289406
Malzbender K, Barbarino P, Barkman Ferrell P, Bradshaw A, Brookes AJ (.../...) Georges J (.../...) et al. (2024). Validation, Deployment, and Real-World Implementation of a Modular Toolbox for Alzheimer’s Disease Detection and Dementia Risk Reduction: The AD-RIDDLE Project. Journal of Prevention of Alzheimer's Disease. DOI: 10.14283/jpad.2024.32
2023
Alzheimer Europe (2023). Guide on the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) and how national Alzheimer’s associations can participate in the review process. ISBN 978-2-919811-13-7, Luxembourg, Alzheimer Europe
Alzheimer Europe (2023). Dementia in Europe Yearbook 2023: Legal capacity and supported decision-making related to dementia. ISBN 978-2-919811-14-4, Luxembourg, Alzheimer Europe
Vaudano E, Georges J, Hofman-Apitius M, Lo D. (2023). Editorial: Impacts of public-private collaborative research on Alzheimer's disease: the case of the innovative medicines initiative. Frontiers in Neurology. DOI: 10.3389/fneur.2023.1321225
Veronese N, Soysal P, Demurtas J, Solmi M, Bruyère O (.../...) Georges J et al. (2023). Physical activity and exercise for the prevention and management of mild cognitive impairment and dementia: a collaborative international guideline. European Geriatric Medicine. DOI: 10.1007/s41999-023-00858-y
Tate A, Suárez-Calvet M, Ekelund M, Eriksson S, Eriksdotter M (.../...) Georges J et al. (2023). Precision medicine in neurodegeneration: the IHI-PROMINENT project. Frontiers in Neurology. 14:1175922. DOI: 10.3389/fneur.2023.1175922
Bradshaw A, Hughes N, Vallez-Garcia D, Chokoshvili D, Owens A, Hansen C et al. (2023). Data sharing in neurodegenerative disease research: challenges and learnings from the innovative medicines initiative public-private partnership model. Frontiers in Neurology. 20;14:1187095. DOI: 10.3389/fneur.2023.1187095
Rommerskirch-Manietta M, Manietta C, Hoffmann AL, Rohra H, Gove D (.../...) Diaz A et al. (2023). Participatory development of a framework to actively involve people living with dementia and those from their social network, and healthcare professionals in conducting a systematic review: the DECIDE-SR protocol. Research Involvolvement and Engagement. 11;9(1):52. DOI: 10.1186/s40900-023-00461-2
Muurling M, Pasmooij AMG, Koychev I, Roik D, Lutz F, (.../...) Diaz-Ponce A, Gove D et al. (2023). Ethical challenges of using remote monitoring technologies for clinical research: A case study of the role of local research ethics committees in the RADAR-AD study. PLoS ONE. 7;18(7):e0285807. DOI: 10.1371/journal.pone.0285807
Ziebuhr B, Zanasi M, Bueno Aguado Y, Losada Durán R, Denning T (.../...) Diaz A et al. (2023). Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment. International Journal of Environmental Research and Public Health. 20,6080. DOI: 10.3390/ijerph20126080
Brem A-K, Kuruppu S, De Boer C, Muurlin M, Diaz-Ponce A, Gove D et al. (2023). Digital endpoints in clinical trials of Alzheimer’s disease and other neurodegenerative diseases: challenges and opportunities. Frontiers in Neurology. 14. DOI: 10.3389/fneur.2023.1210974
Hawksworth C, Salih F, Cresswell K, Steukers L, Diaz C (.../...) Bradshaw A et al. (2023). Participating in innovative medicines initiative funded neurodegenerative disorder projects—An impact analysis conducted as part of the NEURONET project. Frontiers in Neurology. 16;14:1140722. DOI: 10.3389/fneur.2023.1140722
Ellison TS, Cappa SF, Garrett D, Georges J, Iwatsubo T, Kramer JH et al. (2023). Outcome measures for Alzheimer’s disease: A global inter‐societal Delphi consensus. Alzheimer’s & Dementia. DOI: 10.1002/alz.12945
Frisoni GB, Altomare D, Ribaldi F, Villain N, Brayne C (.../...) Georges J et al. (2023). Dementia prevention in memory clinics: recommendations from the European task force for brain health services. The Lancet Regional Health - Europe. DOI: 10.1016/j.lanepe.2022.100576
Alzheimer Europe (2023). Sex, Gender and Sexuality in the Context of Dementia: A guide to raise awareness amongst health and social care workers. ISBN 978-2-919811-06-9, Luxembourg, Alzheimer Europe
Alzheimer Europe (2023). Guidelines for the ethical and inclusive communication about/portrayal of dementia and people with dementia: for the media, researchers, journalists, policy makers and anyone responsible for the portrayal of or communication about dementia. ISBN 978-2-919811-07-6, Luxembourg, Alzheimer Europe
Alzheimer Europe (2023). Linee guida per comunicare e rappresentare in modo etico e inclusivo la demenza e le persone con demenza: Rivolte a media, ricercatori, giornalisti, politici e chiunque si trovi a trattare il tema della demenza. ISBN 978-2-919811-08-3, Luxembourg, Alzheimer Europe
2022
Alzheimer Europe (2022). Dementia in Europe Yearbook 2022: Employment and related social protection for people with dementia and their carers. ISBN 978-2-919811-05-2, Luxembourg, Alzheimer Europe
Colij L, Farrar G, Vallez Garcia D, Bader I, Shekari M (.../...) Birck C, Georges J et al. (2022). The Amyloid Imaging for the Prevention of Alzheimer’s Disease Consortium: A European collaboration with global impact. Frontiers in Neurology. DOI: 10.3389/fneur.2022.1063598
Georges J, Diaz-Ponce A, Lamirel D, Moradi-Bachiller S and Gove D (2022). Keeping track of and recognizing the value of Public Involvement work in dementia research. Frontiers in Neurology. 11;13:1031831 DOI: 10.3389/fneur.2022.1031831
Saunders S, Gregory S, Clement MHS, Birck C, Geyten S van der, Ritchie CW. (2022). The European Prevention of Alzheimer’s Dementia Programme: An Innovative Medicines Initiative-funded partnership to facilitate secondary prevention of Alzheimer’s disease dementia. Frontiers in Neurology. 13:1051543 DOI: 10.3389/fneur.2022.1051543
van Corven CTM, Bielderman A, Diaz Ponce A, Gove D, Georges J, Graff MJL et al. (2022). Empowering interventions for people living with dementia: A European survey. Journal of Advanced Nursing. 78(12):4104–12. DOI: 10.1111/jan.15385
Bunnik EM, Smedinga M, Milne R, Georges J, Richard E, Schermer MHN. (2022). Ethical Frameworks for Disclosure of Alzheimer Disease Biomarkers to Research Participants: Conflicting Norms and a Nuanced Policy. Ethics & Human Research. 44(6):2–13. DOI: 10.1002/eahr.500146
O’Rourke D, Coll-Padrós N, Bradshaw A, Killin L, Pradier L, Georges J et al. (2022). The Innovative Medicines Initiative neurodegeneration portfolio: From individual projects to collaborative networks. Frontiers in Neurology. 2;13:994301. DOI: 10.3389/fneur.2022.994301
Festari C, Massa F, Cotta Ramusino M, Gandolfo F, Nicolosi V (…/…) Georges J et al. (2022). European consensus for the diagnosis of MCI and mild dementia: Preparatory phase. Alzheimer’s & Dementia. DOI: 10.1002/alz.12798
van Gils AM, Visser LNC, Hendriksen HMA, Georges J et al. (2022). Development and design of a diagnostic report to support communication in dementia: Co‐creation with patients and care partners. Alzheimer’s & Dementia: Diagnosis Assessment & Disease Monitoring. 14(1). DOI: 10.1002/dad2.12333
Alzheimer Europe (2022). Dementia in Europe Yearbook 2021: Dementia-inclusive Communities and initiatives across Europe. ISBN 978-2-919811-02-1, Luxembourg, Alzheimer Europe
Gustavsson A, Norton N, Fast T, Frölich L, Georges J et al. (2022). Global estimates on the number of persons across the Alzheimer’s disease continuum. Alzheimer’s & Dementia. DOI: 10.1002/alz.12694
Jessen F, Georges J, Wortmann M, Benham-Hermetz S. (2022). What Matters to Patients with Alzheimer’s Disease and Their Care Partners? Implications for Understanding the Value of Future Interventions. The Journal Of Prevention of Alzheimer’s Disease. 9(3): 550-555. DOI: 10.14283/jpad.2022.22
2021
Boada M, Rodrigo A, Jessen F, Winblad B, Kramberger MG (…/…) Georges J et al. (2021). Complementary pre‐screening strategies to uncover hidden prodromal and mild Alzheimer’s disease: Results from the MOPEAD project. Alzheimer’s & Dementia. 18(6): 1119-1127. DOI: 10.1002/alz.12441
Boccardi M, Monsch AU, Ferrari C, Altomare D, Berres M (.../...) Georges J et al. (2021). Harmonizing neuropsychological assessment for mild neurocognitive disorders in Europe. Alzheimer’s & Dementia. 18(1): 29-42. DOI: 10.1002/alz.12365
Diaz A, Gove D, Nelson M, Smith M, Tochel C, Bintener C, Ly A, Bexelius C, Gustavsson A, Georges J, Gallacher J and Sudlow C. (2021). Conducting public involvement in dementia research: The contribution of the European Working Group of People with Dementia to the ROADMAP project. Health Expectations. 24(3):757-765. DOI: 10.1111/hex.13246
Eggink E, Hafdi M, Hoevenaar-Blom MP, Song M, Andrieu S (…/…) Birck C (…/…) Georges J et al. (2021). Prevention of dementia using mobile phone applications (PRODEMOS): protocol for an international randomised controlled trial. BMJ Open. 11(6): e049762. DOI: 10.1136/bmjopen-2021-049762
Faulkner S, Sayuri SL, Pakarinen C, Somers F, Edo MJV (…/…) Diaz-Ponce A, Gove D et al. (2021). Understanding multi-stakeholder needs, preferences and expectations to define effective practices and processes of patient engagement in medicine development: A mixed-methods study. Health Expectations. 24(2):601-616. DOI: 10.1111/hex.13207
Faulkner SD, Pittens CACM, Goedhart NS, Davies EH, Manning E, Diaz-Ponce A et al. (2021). Optimising Multi-stakeholder Practices in Patient Engagement: A Gap Analysis to Enable Focused Evolution of Patient Engagement in the Development and Lifecycle Management of Medicines. Therapeutic Innovation & Regulatory Science. 55(6): 1165-1179. DOI: 10.1007/s43441-021-00313-9
Frederiksen KS, Nielsen TR, Winblad B, Schmidt R, Kramberger MG (.../...) Georges J et al. (2021). European Academy of Neurology/European Alzheimer’s Disease Consortium position statement on diagnostic disclosure, biomarker counseling, and management of patients with mild cognitive impairment. European Journal of Neurology. 28(7): 2147–2155. DOI: 10.1111/ene.14668
Gove D, Diaz A and Georges J (2021). Diagnosis and Support of Patients with Dementia: A Patient Perspective on Current Goals and Practice. DOI: 10.1007/978-3-030-77904-7_2
Gove D, Nielsen TR, Smits C, Plejert C, Rauf MA (…/…) Georges J et al. (2021). The challenges of achieving timely diagnosis and culturally appropriate care of people with dementia from minority ethnic groups in Europe. International Journal of Geriatric Psychiatry. 36(12): 1823-1828. DOI: 10.1002/gps.5614
Mank A, Maurik IS, Bakker ED, Glind EMM, Jönsson L (.../...) Diaz A, Gove D et al. (2021). Identifying relevant outcomes in the progression of Alzheimer’s disease; what do patients and care partners want to know about prognosis? Alzheimer’s & Dementia: Translational Research & Clinical Interventions. 7(1): e12189. DOI: 10.1002/trc2.12189
Mank A, van Maurik IS, Bakker ED, van de Glind, Jönsson L (…/…) Diaz A, Gove D et al. (2021). Prognosis of Alzheimer’s disease; what do patients and care partners want to know? Alzheimer’s & Dementia. 20;7(1): e12189. DOI: 10.1002/trc2.12189
Toniolo S, Scarioni M, Di Lorenzo F, Hort J, Georges J et al. (2021). Dementia and COVID-19, a Bidirectional Liaison: Risk Factors, Biomarkers, and Optimal Health Care. Journal of Alzheimer’s Disease. 82(3): 883-898. DOI: 10.3233/JAD-210335
Vat LE, Finlay T, Robinson P, Barbareschi G, Boudes M, Diaz Ponce A et al. (2021). Evaluation of patient engagement in medicine development: A multi-stakeholder framework with metrics. Health Expectations. 24(2): 491-506 DOI: 10.1111/hex.13191
Visser LNC, Minguillon C, Sánchez-Benavides G, Abramowicz M, Altomare D (…/…) Georges J et al. (2021). Dementia risk communication. A user manual for Brain Health Services—part 3 of 6. Alzheimer's Research & Therapy. 13(1): 170. DOI: 10.1186/s13195-021-00840-5
Wolverson E, Dunn R, Moniz-Cook E, Gove D and Diaz-Ponce A. (2021). The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia. Journal of Advanced Nursing. 77(4): 1992-2001 DOI: 10.1111/jan.14787
2020
Alzheimer Europe (2020). Dementia as a European Priority – A Policy Overview. ISBN 978-2-9199578-5-9, Luxembourg, Alzheimer Europe
Alzheimer Europe (2020). Dementia in Europe Data sharing in dementia research – the EU landscape. ISBN 978-2-919811-00-7, Luxembourg, Alzheimer Europe
Alzheimer Europe (2020). European Dementia Monitor 2020 - Comparing and benchmarking national dementia strategies and policies. ISBN 978-2-9199578-6-6, Luxembourg, Alzheimer Europe
Alzheimer Europe (2020). Legal capacity and decision making: The ethical implications of lack of legal capacity on the lives of people with dementia. ISBN 978-2-9199578-7-3, Luxembourg, Alzheimer Europe
Angehrn Z, Sostar J, Nordon C, Turner A, Gove D et al. (2020). Ethical and Social Implications of Using Predictive Modeling for Alzheimer’s Disease Prevention: A Systematic Literature Review. Journal of Alzheimer's Disease. 76(3): 923 – 940. DOI: 10.3233/JAD-191159
Boada M, Winblad B, Jessen F, Jelle Visser PJ (.../...) Georges J et al. (2020). Pre‐screening models for patient engagement: The MOPEAD project: Neuropsychology: Awareness of cognitive capacities and subjective cognitive decline. Alzheimer’s and Dementia. 16(S6). DOI: 10.1002/alz.044796
Clarke C, Woods B, Moniz-Cook E, Mountain G (…/...) Diaz A, Gove D et al. (2020). Measuring the well-being of people with dementia: a conceptual scoping review. Health and Quality of Life Outcomes. 24;18(1): 249. DOI: 10.1186/s12955-020-01440-x
Frederiksen KS, Cooper C, Frisoni GB, Frölich L, Georges J et al. (2020). A European Academy of Neurology guideline on medical management issues in dementia. European Journal of Neurology. 27(2 Suppl.). DOI: 10.1111/ene.14412
Frederiksen KS, Nielsen TR, Winblad B, Schmidt R, Kramberger MG (…/…) Georges J et al. (2020). European Academy of Neurology/European Alzheimer’s Disease Consortium position statement on diagnostic disclosure, biomarker counseling, and management of patients with mild cognitive impairment. European Journal of Neurology. 28(7):2147-2155. DOI: 10.1111/ene.14668
McKeown A, Turner A, Angehrn Z, Gove D et al. (2020). Health Outcome Prioritization in Alzheimer's Disease: Understanding the Ethical Landscape. Journal of Alzheimer's Disease. 77(2020): 339–353. DOI: 10.3233/JAD-191300
Owens AP, Hinds C, Manyakov NV, Stavropoulos TG, Lavelle G, Gove D, Diaz-Ponce A and Aarsland D. (2020). Selecting Remote Measurement Technologies to Optimize Assessment of Function in Early Alzheimer's Disease: A Case Study. Frontiers in psychiatry. 5;11: 582207. DOI: 10.3389/fpsyt.2020.582207
Roberts C, Rochford-Brennan H, Goodrick J, Gove D, Diaz-Ponce A and Georges J. (2020). Our reflections of Patient and Public Involvement in research as members of the European Working Group of People with Dementia. Dementia. 19(1): 10-17. DOI: 10.1177/1471301219876402
Sannemann L, Müller T, Waterink L, Zwan MD, Wimo A (.../...) Georges J (…/…) and the MOPEAD consortium. (2020). General practitioners’ opinion on early and pre‐dementia diagnosis of AD: A MOPEAD project survey in five European countries: Neuropsychiatry and behavioral neurology/Mild cognitive impairment/Early symptomatic disease. Alzheimer’s and Dementia. 23;13(1): e12130. DOI: 10.1002/alz.040357
Solomon A, Kivipelto M, Ngandu T, Mangialasche F, Hartmann T (.../...) Georges J and Middleton L. (2020). EURO‐FINGERS/UK FINGERS (Europe): World‐Wide FINGERS network: The first global network of multidomain dementia prevention trials. Alzheimer’s and Dementia. 16(S10). DOI: 10.1002/alz.046949
Vat LE, Finlay T, Schuitmaker-Warnaar TJ, Fahy N, Robinson P (…/…) Diaz A et al. (2020). Evaluating the “return on patient engagement initiatives” in medicines research and development: a literature review. Health Expectations. 23(1): 5-18. DOI: 10.1111/hex.12951
2019
Alzheimer Europe (2019). Dementia in Europe Yearbook 2019: Estimating the prevalence of dementia in Europe. ISBN 978-99959-995-9-9, Luxembourg, Alzheimer Europe
Alzheimer Europe (2019). Overcoming ethical challenges affecting the involvement of people with dementia in research: recognising diversity and promoting inclusive research issues linked to restrictions of freedom of people with dementia. ISBN 978-2-9199578-0-4, Luxembourg, Alzheimer Europe
Angehrn Z, Nordon C, Turner A, Gove D et al. (2019). Ethical and social implications of using predictive modeling for Alzheimer’s disease prevention: a systematic literature review protocol, BMJ Open. 3;9(3):e026468. DOI: 10.1136/bmjopen-2018-026468
Gallacher J (…/…) Bintener C, Bouvy JC, Campo L, Diaz C, Georges J (…/…) and ROADMAP Consortium. (2019). Challenges for Optimizing Real-World Evidence in Alzheimer's Disease: The ROADMAP Project. Journal of Alzheimer’s Disease. 67(2): 495-501. DOI: 10.3233/JAD-180370
Krolak-Salmon P, Maillet A, Vanacore N, Selbaek G (.../...) Georges J et al. (2019). Toward a Sequential Strategy for Diagnosing Neurocognitive Disorders: A Consensus from the "Act On Dementia" European Joint Action. Journal of Alzheimer’s Disease. 72(2): 363-372. DOI: 10.3233/JAD-190461
Rodríguez-Gómez O, Rodrigo A, Iradier F, Santos-Santos MA, Hundemer H (…/…) Gove D (…/…) Bintener C (…/…) Georges J and the MOPEAD Consortium. (2019). The MOPEAD project: Advancing patient engagement for the detection of "hidden" undiagnosed cases of Alzheimer's disease in the community. Alzheimers Dementia. 15(6): 828-839. DOI: 10.1016/j.jalz.2019.02.003
Wagg A, Gove D, Leichsenring K and Ostaszkiewicz J. (2019). Development of quality outcome indicators to improve the quality of urinary and faecal continence care. International Urogynecology Journal. 30: 23–32. DOI: 10.1007/s00192-018-3768-2
Woods B, Arosio F, Diaz A, Gove D, Holmerová I (…/…) and Georges J. (2019). Timely diagnosis of dementia? Family carers' experiences in 5 European countries. International Journal of Geriatric Psychiatry. 34(1): 114-121. DOI: 10.1002/gps.4997
2018
Alzheimer Europe (2018). Dementia in Europe Yearbook 2018: Comparison of national dementia strategies in Europe. ISBN 978-999959-995-4-4, Luxembourg, Alzheimer Europe
Alzheimer Europe (2018). European Carers’ Report 2018: Carers’ experiences of diagnosis in five European countries. ISBN 978-999959-995-2-0, Luxembourg, Alzheimer Europe
Alzheimer Europe (2018). The development of intercultural care and support for people with dementia from minority ethnic groups. ISBN 978-2-9599755-5-1, Luxembourg. Alzheimer Europe
Gove D, Diaz-Ponce A, Georges J, Moniz-Cook E, Mountain G, Chattat R, Øksnebjerg L and the European Working Group of People with Dementia. (2018). Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement). Aging and Mental Health. 22(6): 723-729. DOI: 10.1080/13607863.2017.1317334
Milne R, Bunnik E, Diaz A, Richard E, Badger S, Gove D, Georges J et al. (2018). Perspectives on Communicating Biomarker-Based Assessments of Alzheimer's Disease to Cognitively Healthy Individuals. Journal of Alzheimer’s Disease. 62(2): 487-498. DOI: 10.3233/JAD-170813
Milne R, Diaz A, Badger S, Bunnik E, Fauria K and Wells K. (2018). At, with and beyond risk: expectations of living with the possibility of future dementia. Sociology of Health & Illness. 40(6): 969-987. DOI: 10.1111/1467-9566.12731
Øksnebjerg L, Diaz‐Ponce A, Gove D, Moniz‐Cook E, Mountain G, Chattat R and Woods B. (2018). Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan‐European consultation. Health Expectations. 21(6): 1056-1065. DOI: 10.1111/hex.12799
Thorogood A, Mäki-Petäjä-Leinonen A, Brodaty H, Dalpé G, Gastmanns C (…/…) Gove D (…/…) Global Alliance for Genomics and Health, Ageing and Dementia Task Team. (2018). Consent recommendations for research and international data sharing involving persons with dementia. Alzheimer's & Dementia. 14(10): 1334-1343. DOI: 10.1016/j.jalz.2018.05.011
2017
Alzheimer Europe (2017). Dementia as a disability? Implications for ethics, policy and practice – A discussion paper. ISBN 978-999959-995-1-3, Luxembourg, Alzheimer Europe
Alzheimer Europe (2017). Dementia in Europe Yearbook 2017: Standards for residential care facilities in Europe. ISBN 978-999959-995-0-6, Luxembourg, Alzheimer Europe
Alzheimer Europe (2017). European Dementia Monitor 2017: Comparing and benchmarking national dementia strategies and policies. ISBN 978-999959-995-0-6, Luxembourg, Alzheimer Europe
Dröes RM, Chattat R, Diaz A, Gove D (…/…) and the INTERDEM Social Health Taskforce. (2017). Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice. Aging & Mental Health. 21(1): 4-17. DOI: 10.1080/13607863.2016.1254596
Gove D, Diaz-Ponce A and Georges J. (2017). Palliative care covers more than end-of-life issues: why is this not common practice in dementia care and what are the implications? Annals of Palliative Medicine. 6(4): 390-392. DOI: 10.21037/apm.2017.06.25
Gove D, Scerri A, Georges J et al. (2017). Continence care for people with dementia living at home in Europe: a review of literature with a focus on problems and challenges. Journal of Clinical Nursing. 26(3-4): 356-365. DOI: 10.1111/jocn.13582
Milne R, Bunnik K, Tromp S, Bemelmans S, Badger S, Gove D et al. (2017). Ethical issues in the development of readiness cohorts in Alzheimer’s disease research. Journal of Prevention of Alzheimer’s Disease. 4(2): 125-131. DOI: 10.14283/jpad.2017.5
2016
Alzheimer Europe (2016). Dementia in Europe Yearbook 2016: Decision making and legal capacity in dementia. ISBN 978-99959-863-8-4, Luxembourg, Alzheimer Europe
Alzheimer Europe (2016). Discussion paper on ethical issues linked to the changing definitions/use of terms related to Alzheimer’s disease. ISBN 978-99959-863-9-1, Luxembourg: Alzheimer Europe
Gerritsen D, Oyebode J and Gove D. (2016). Ethical implications of the perception and portrayal of dementia. Dementia. 17(5): 596-608. DOI: 10.1177/1471301216654036
Gove D, Downs M, Vernooij-Dassen M and Small N. (2016). Stigma and GPs’ perceptions of dementia. Aging & Mental Health. 20(4): 391-400. DOI: 10.1080/13607863.2015.1015962
Meiland F, Innes A, Mountain G, Robinson L, van der Roest H (…/…) Gove D et al. (2016). Technologies to support community-dwelling persons with dementia: an INTERDEM position paper on issues regarding development, usability, (cost-) effectiveness, deployment and ethics. JMIR Rehabilitation and Assistive Technologies. 16;4(1): e1. DOI: 10.2196/rehab.6376
Van der Steen JT, Radbruch L, de Boer ME, Jünger S, Hughes JC (…/…) Gove D (…/…) and on behalf of the European Association for Palliative Care. (2016). Achieving consensus and controversy around applicability of palliative care to dementia. International Psychogeriatrics. 28(1): 133-45. DOI: 10.1017/S1041610215000824