Kevin is Chairperson of the Irish dementia working group and Vice-Chair of the European Working Group of People with Dementia, as well as being the co-founder of Lewy body Ireland. Diagnosed with Parkinson just over 6 years ago, and later also diagnosed with Lewy body dementia, Kevin became very involved in Public and Patient Involvement, and has written two books about Lewy body dementia, entitled Lewy Body Dementia Survival and Me and I am KEVIN not Lewy.. He was one of the first people in the world to write a book about Lewy body dementia from the patient’s point of view. He recently received the Presidential award from Longford International College in Ireland for outstanding achievements in bringing awareness of Lewy Body Dementia, to people not just in Ireland but around the world.

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