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2021 Work Plan

Our work

The 2021 Work Plan of Alzheimer Europe was adopted by our Board at its meeting of 5 October 2020 and may be subject to change due to changing circumstances.

Alzheimer Europe Core activities

Objective 1: Providing a voice to people with dementia and their carers

In 2021, Alzheimer Europe will

  • organise four meetings of the European Working Group of People with Dementia (EWGPWD)
    • map and analyse the patient and public involvement activities in EU-funded research projects
    • involve the EWGPWD in the organisation of the Annual Conference by including representatives in the Programme Committee to help with the selection of abstracts, by inviting them to deliver one keynote presentation and by asking them to organise a special symposium on the experience of living with dementia
    • involve the EWGPWD in various EU projects where AE is asked to provide the views of people with dementia
    • involve the Chairperson of the European Working Group of People with Dementia as a full voting member at AE Board meetings
    • ensure people with dementia and carers are represented in all AE projects and working groups

Objective 2: Making dementia a European priority

In 2021, Alzheimer Europe will

  • update its inventory of dementia-inclusive initiatives and communities in Europe and dedicate its 2021 Dementia in Europe Yearbook to the topic
  • develop the European Alzheimer’s Alliance with the aim of gathering the support of 100 Members of the European Parliament from all European countries and involve members of the European Alzheimer’s Alliance in the organisation of three lunch debates in the European Parliament
  • campaign for the inclusion of dementia as a priority of the European Union’s health and research programmes
  • coordinate the group of European government experts on dementia and organise two meetings of the group bringing together health ministry officials from at least 15 countries with representatives from the European Commission, the OECD and the World Health Organization
  • play an active role on the Patients’ and Consumers’ Working Party of the European Medicines Agency
  • organise two face-to-face meetings of the public affairs committee for an exchange on EU and national policy developments and campaigns
  • play an active role as a member of the European Patients’ Forum and European Disability Forum and support the development of positions in response to EU policy developments

Objective 3: Promoting a rights based approach to dementia

In 2020, Alzheimer Europe will

  • explore issues related to sex, gender and sexuality as the priority of its European Dementia Ethics Network and carry out an extensive literature review on this subject, develop recommendations and publish these with the findings of the literature review in the 2021 Ethics report
  • continue its collaboration with the European Disability Forum on the development of a European disability strategy and the implementation of the UN Convention on the Rights of Persons with Disabilities (UNCRPD)
  • continue working with the Council of Europe and contribute to ongoing discussions on legal capacity, guardianship systems and bioethics

Objective 4: Supporting dementia research

In 2021, Alzheimer Europe will

  • continue with the development of its European Dementia Observatory by proactively identifying relevant research developments and communicating them to its member organisations and wider community
    • carry out a mapping exercise of national public and private funding programmes for dementia research
    • organise a conference in Bucharest, Romania under the motto “Building bridges” from 29 November to 1 December 2021 with the participation of at least 600 participants from 30 European countries
    • improve the collaboration with the INTERDEM network and the European Alzheimer’s Disease Consortium for the organisation of the conference and the selection of topics to be addressed
    • evaluate participants’ satisfaction with the conference programme and practical organisation

Objective 5: Strengthening the European dementia movement

In 2021, Alzheimer Europe will

  • develop and approve a new strategic plan for 2021-2025 based on the feedback and input of its national member organisations
  • update its member organisations on relevant EU policy developments and involve them in the development of policy positions through AE’s public affairs working group
  • organise its Alzheimer’s Association Academy in June and develop a programme based on the subjects and issues identified by its members
  • organise quarterly meetings of the AE Board to monitor the association’s financial situation and the implementation of its work plan
  • continue to partner with Newsweaver for the sending of its e-mail newsletter and aim to expand the list of people receiving the newsletter to 8,000
  • continue the development of its website and aim to attract 750,000 unique visitors to its website
  • ensure social media are a full part of the organisation’s communication activities and aim to have 15,000 Twitter followers and Facebook likes by the end of the year.

Other activities and projects

EU Project participation

In 2021, Alzheimer Europe will

  • continue to engage with the Innovative Medicines Initiative, the Joint Programme Neurodegenerative Diseases Research (JPND), Horizon2020 and the European Innovation Partnership on Active and Healthy Ageing to identify additional opportunities to participate in EU projects,
  • continue its active involvement in a number of EU funded projects by representing the views of people with dementia and their carers in the research consortium, by contributing to the ethical discussions and by supporting the communication and dissemination activities towards a non-scientific audience:
    • AMYPAD (Amyloid imaging to prevent Alzheimer’s disease)
    • Euro-FINGERS: Multi-modal precision prevention toolbox for dementia in Alzheimer’s disease
    • NEURONET (Efficiently Networking European Neurodegeneration Research)
    • PRODEMOS (Prevention of Dementia using Mobile phone Applications)
    • RADAR-AD (Development and validation of technology enabled, quantitative and sensitive measures of functional decline in people with early stage Alzheimer’s Disease)
    • RECOGNISED (Retinal and cognitive dysfunction in type 2 diabetes: unravelling the common pathways and identification of patients at risk of dementia)
    • VirtualBrainCloud (Personalized Recommendations for Neurodegenerative Disease)
    • Continue its collaboration with the following research projects
      • ADAIR
      • DISTINCT
      • MIRIADE
      • SPAN+

Corporate Affairs

In 2021, Alzheimer Europe will

  • continue including phase II and phase III clinical trials being conducted in Europe on the AE website
  • organise three company round tables bringing together the AE Board, representatives of corporate sponsors and AE member organisations to discuss the progress of the organisation’s different corporate projects
  • organise a European Dementia Summit bringing together the chairpersons and key representatives of European organisations with an interest in the prevention, diagnosis, treatment, care and management of Alzheimer’s disease and dementia
  • publish three editions of the Dementia in Europe magazine (February, June and October)
  • organise three lunch debates in the European Parliament in February, June and September.

Annex 1: Meetings organised by Alzheimer Europe in 2021

Date

Meeting

Venue

22-23 February

Alzheimer Europe Board

Brussels, Belgium

23 February

European Parliament lunch debate

Brussels, Belgium

23 February

Company Round Table

Brussels, Belgium

23-25 February

European Working Group of People with Dementia

Brussels, Belgium

24 February

Public Affairs Meeting

Brussels, Belgium

14 June

Alzheimer Europe Board

Brussels, Belgium

15 June

Alzheimer Europe Annual General Meeting

Brussels, Belgium

15-16 June

Alzheimer’s Association Academy

Brussels, Belgium

15-16 June

European Group of Governmental Experts on Dementia

Brussels, Belgium

16 June

European Parliament lunch debate

Brussels, Belgium

16 June

Company Round Table

Brussels, Belgium

16-18 June

European Working Group of People with Dementia

Brussels, Belgium

27-28 September

Alzheimer Europe Board

Brussels, Belgium

28 September

European Parliament lunch debate

Brussels, Belgium

28 September

Company round table meeting

Brussels, Belgium

28-30 September

European Working Group of People with Dementia

Brussels, Belgium

29 September

European Dementia Summit

Brussels, Belgium

29 November

Alzheimer Europe Board

Bucharest, Romania

29 November – 1 December

31st Alzheimer Europe Conference “Building bridges”

Bucharest, Romania

2 December

European Group of Governmental Experts on Dementia

Bucharest, Romania

 

 
 

Last Updated: Tuesday 06 October 2020

 

 
 

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