2004 Highlights

In 2004, Alzheimer Europe:

  • Improved its collaboration with International and European patient organisations and in particular Alzheimer’s Disease International, the European Patient’s Forum and the European Federation of Neurological Association,
  • Strengthened its contacts with the scientific community through collaboration with the European Federation of Neurological Societies (EFNS), the European Alzheimer’s Disease Consortium and the “Early Detection and Timely Intervention in Dementia” network,
  • Represented the views of people with dementia and their carers in the EFNS task force for the revision of its guidelines on the diagnosis and management of Alzheimer’s disease and other dementias,
  • Adopted a new communication strategy to improve the information exchange between Alzheimer Europe, national associations and other organisations,
  • Organised its 14th Annual Conference in Prague which brought together 300 participants from all over Europe,
  • Received the support of 196 MEPs who signed a written declaration on the fight against Alzheimer’s disease,
  • Contributed to the Commission reflection document on the future development of a European health policy,
  • Participated actively in the working group with patient organisations set up by the European Medicines Evaluations Agency,
  • Continued its collaboration with other NGOs which enjoy consultative status with the Council of Europe,
  • Presented the findings of its members’ survey and included regional organisations of its members on its web site,
  • Carried out an extensive literature search and a comparison of the legal status of advance directives and prepared a first draft position on the subject,
  • Produced a first version of a manual for people with dementia and their carers for the time after diagnosis,
  • Set up a working group on home care and surveyed member organisations on the provision of home care in their respective countries.

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2004ar.pdf (3.7 MB)