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CO-desiGning demeNtia dIagnoSis ANd post-diagnostic CarE


Start Date
End Date
Total Funding
€ 1 500 000
Funding Programme
European Countries Involved

People with dementia and their care partners are often dissatisfied with the process of diagnosis, communication and recommendations after diagnosis. We aim to design with people with dementia, their care partners and clinicians recommendations and campaigns for all concerned on how to improve diagnostic process and post-diagnostic care in Europe, Canada and Australia. We will evaluate the effectiveness with view to wider distribution globally. The primary outcome will be improvement in satisfaction with process of diagnosis and post-diagnostic care by persons diagnosed with dementia and their care partners. Secondary outcomes will be evaluation of the campaigns using the RE-AIM framework and changes in clinicians’ attitudes, skills and practice. Outputs will be a series of core recommendations for implementing best practice aligned with published dementia guidelines that can be modified according to local needs. We will work with an International Advisory Committee (ADI, Dementia Alliance International, LMIC) to prepare recommendations suitable for adoption internationally.

Project partners

University of New South Wales
University of Sydney
McGill University
Maastricht University
University College London
Newcastle University Institute for Ageing
Wroclaw Medical University

Alzheimer Europe's database on research projects was developed as part of the 2020 Work Plan which received funding under an operating grant from the European Union’s Health Programme (2014–2020).