Helsinki Manifesto

 

Ten years on from the Glasgow Declaration (2014), dementia has been deprioritised at a European level and in many European countries. This has taken place despite the growing number of people living with the condition and the continued lack of access to diagnosis, treatment and care, which have been identified as long-standing challenges in countries across Europe.

In response, at our Annual General Meeting on 16 October 2023, in Helsinki, Finland, our members adopted the “Helsinki Manifesto”, which outlines the current position of dementia across Europe and lays the foundation for Alzheimer Europe’s campaigning activities over the next five years (2024-2029), in the run up to the European Parliament elections and the next term of the European Commission.

The Helsinki Manifesto is divided into the following policy areas:

  • Health
  • Research
  • Disability and social rights
  • Support for informal carers.

Under each policy area, a brief rationale for action is outlined, followed by a number of specific demands for European and national decisions-makers, including:

  • Invest in improvements to support timely diagnosis, including access to imaging, biomarker testing and new treatment options
  • An increase in the funding allocated for dementia research which is proportionate to its societal cost, bringing the total funding to at least the level of other non-communicable diseases
  • The prioritisation of dementia in future health programmes with dedicated funding for projects and actions in line with other non-communicable diseases (e.g. cancer)
  • The development and implementation of a European Dementia Action Plan, to coordinate efforts and programmes across the domains of health, research and social affairs.

The full manifesto and one-page summary can be downloaded below.

European and national organisations with a mutual interest in these policy areas are invited to endorse the Helsinki Manifesto, with organisations who have done so visible below. If your organisation would be interested in endorsing the Manifesto, please send an email to info@alzheimer-europe.org

To date, 70 European and national organisations have endorsed the Helsinki Manifesto

 

Accademia Scherma Milano, Italy 

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Accademia Scherma Milano

ADIS project

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ADIS
AFA Fuengirola, Mijas Costa, Spain
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AFA Fuengirola

AFA PArla, Spain

 

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Alzheimer Austria, Vienna, Austria
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Alzheimer Bulgaria (Гражданско сдружение Алцхаймер България), Sofia, Bulgaria
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Alzheimer Croatia (Hrvatska udruga za Alzheimerovu bolest), Zagreb, Croatia
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Croatia - Alzheimer Croatia logo
Alzheimer Iceland, Reykjavik, Iceland
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Alzheimer Liga Vlaanderen, Belgium
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Liga
Alzheimer Nederland, Amersfoort, Netherlands
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Alzheimer Polska, Warsaw, Poland
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Alzheimer Portugal, Lisbon, Portugal
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Alzheimer Schweiz Suisse Svizzera, Bern, Switzerland
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Alzheimer Scotland, Edinburgh, Scotland, UK
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Alzheimer Scotland logo_square
Alzheimer Society of Finland (Muistiliitto), Helsinki, Finland
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Alzheimer Uniti Onlus, Rome, Italy
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Alzheimer's Care Armenia, Yerevan, Armernia
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armenia
Alzheimer's Disease International, London, England, UK
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Alzheimer's Society, London, England, UK
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Alzheimerforeningen, Copenhagen, Denmark
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AENMA - Centro de día terapéutico, Madrid, Spain

 

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Asociación Alzheimer Valencia, Spain
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asociacion alzheimer valencia
Asociación de Familiares de personas con Alzheimer y otras demencias de Barcelona
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Afab
Association Luxembourg Alzheimer, Luxembourg City, Luxembourg
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Baluchon France, France
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baluchon
Česká alzheimerovská společnost (Czech Alzheimer Society), Prague, Czech Republic
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Confederación  Andaluza de Alzheimer (ConFEAFA)Spain
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confeafa
Confederación Española de Alzheimer (CEAFA), Pamplona, Spain
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COTEC - Council of Occupational
                Therapists for the European
                Countries, Germany
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cotec
Demensförbundet, Stockholm, Sweden
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Dementia Jersey, St Helier, Jersey
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Dementia Lithuania (Demencija Lietuvoje), Vilnius, Lithuania
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Demenz Selbsthilfe Austria, Vienna, Austria
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Demenz Selbsthilfe Austria
Deutsche Alzheimer Gesellschaft e.V. Selbsthilfe Demenz, Berlin, Germany
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 eBRAIN-Health
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eBrain-Health logo
Eurocarers, Brussels, Belgium
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European Ageing Network (EAN), Prague, Czech Republic
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ean
European Federation of Neurological Associations (EFNA), Brussels, Belgium
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European Institute of Women's Health (EIWH), Dublin, Ireland
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Federazione Alzheimer Italia, Milan, Italy
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Fondation Médéric Alzheimer (FMA), France
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fondation Médéric France
France Alzheimer & Maladies Apparentées, Paris, France
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Fundación Alzheimer España (FAE), Madrid, Spain
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International Psychogeriatric Association, Milwaukee, Wisconsin, USA
Ligue Nationale Alzheimer Liga, Brussels, Belgium
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Malta Dementia Society, Msida, Malta
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Medico e paziente, Italy
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Medico e paziente
Multi-MeMo project
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multi-memo
NEZABUTNI - Charitable Foundation, Kyiv, Ukraine
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NGO Institute for Alzheimer’s disease and Neuroscience (IAN), Skopje, North Macedonia
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NGO Living with Dementia (Elu Dementsusega), Tallinn, Estonia
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Norwegian Health Association (Nasjonalforeningen for folkehelsen), Oslo, Norway
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Panhellenic Federation of Alzheimer’s Disease and Related Disorders ( Πανελλήνια Ομοσπονδία Νόσου Alzheimer και Συναφών Διαταραχών), Thessaloniki, Greece
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  Pasqual Maragall Foundation, Spain
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Pasqual Maragall
Pattern-Cog
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pattern-cog
Polskie Stowarzyszenie Pomocy Osobom z Chorobą Alzheimera, Warsaw, Poland
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PRIME (Prevention and Remediation of Insulin Multimorbidity in Europe) Consortium 
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PRIME
Radosny Dom Seniora (Poland)
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radosny dom seniora
Serbian Society for Alzheimer Disease (SUAB), Belgrade, Serbia
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Slovenská Alzheimerova spoločnost, Bratislava, Slovakia
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Spomincica - Alzheimer Slovenija, Lubljana, Slovenia

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Social Cluster Association, Budapest, Hungary
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SPF Seniorerna, Spain
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SPF Seniorerna
The Alzheimer Society of Ireland 
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The Cyprus Alzheimer Association, Nicosia, Cyprus

 

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Türkiye Alzheimer Derneği, Istanbul, Turkey

 

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Women's Brain Project, Gunterhausen, Germany
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