We present a series of interviews with members of the European Working Group of People with Dementia and European Dementia Carers Working Group from our conference in Helsinki

22/11/2023

During the 33rd Alzheimer Europe Conference (33AEC) “New opportunities in dementia care, policy and research”, which took place between 16 and 18 October 2023 in Helsinki, we were delighted to work with Adam Smith, Programme Director for Dementia Researcher, to produce a series of four interviews. These four interviews are with members of the European Working Group of People with Dementia (EWGPWD) and the European Dementia Carers Working Group (EDCWG) and focus on their experiences of the conference and on the vital contributions of both groups to the work of Alzheimer Europe and its conferences.

Interview 1

EDCWG Chairperson Sonata Mačiulskytė and Vice-chairperson Trevor Salomon discuss the group and its work, as well as their experiences of and contributions to the conference: https://www.youtube.com/watch?v=43b6N9p54e4&list=PLO-PgQHI1WQU2y0vmGZMLG_hdmsCEZW40&index=1

Interview 2

In this interview, with EWGPWD Vice-chairperson Kevin Quaid and group member Lieselotte (Lilo) Klotz, discussions revolve around what they enjoyed most about the event and how they and the whole group were involved in different aspects of 33AEC: https://www.youtube.com/watch?v=AWTuajbH3bY&list=PLO-PgQHI1WQU2y0vmGZMLG_hdmsCEZW40&index=2

Interview 3

Chris Roberts, Chairperson of the EWGPWD and group member Pia Knudsen focus on the importance of Alzheimer Europe's first ever conference plenary session organised and delivered entirely by people living with dementia (Chris chaired the plenary session and Pia was one of four speakers): https://www.youtube.com/watch?v=RlxR8vzoSzA&list=PLO-PgQHI1WQU2y0vmGZMLG_hdmsCEZW40&index=3

Interview 4

The last of our 33AEC interviews is with EWGPWD member Petri Lampinen, who reflects on the event being hosted in his home country of Finland and on his active involvement. He also shares some of his highlights from the conference. Many thanks to Finnish researcher Anna Rosenberg for translating Petri's words into English: https://www.youtube.com/watch?v=kcOvlg-DgW0&list=PLO-PgQHI1WQU2y0vmGZMLG_hdmsCEZW40&index=4