On 27 November, an international team of researchers from the Innovative Medicines Initiative (IMI) ROADMAP project published a scientific article on the ROADMAP Data Cube in the journal Alzheimer’s & Dementia. The Data Cube is an interactive online tool that visualises availability of Alzheimer’s disease (AD) relevant outcomes in 66 data sources, encompassing 13 outcome domains. The researchers also performed a gap analysis and report that they identified cognitive ability, functional ability/independence, behavioural/neuropsychiatric symptoms, treatment, comorbidities, and mortality as the most collected outcomes.
When considering which outcomes are relevant to the AD research field, the scientists found that data in caregiver-related outcomes were the scarcest. In addition, they also reported that in general, electronic health records covered a broader, but also less detailed data spectrum than research cohorts. The open access publication is available here:
https://www.alzheimersanddementia.com/article/S1552-5260(19)35487-1/pdf
More information about the project can be found at: www.roadmap-alzheimer.org
The Data Cube can be accessed here: https://datacube.roadmap-alzheimer.org/
This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 116020 (“ROADMAP”). This Joint Undertaking receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA.
