On 22 January, researchers from the PREDICTOM project met online with members of the three Public Involvement advisory boards for an informative update on the project’s progress since its launch in early 2024. PREDICTOM is an international, cross sector research initiative developing an AI driven cognitive and biomarker screening platform to support earlier and more accurate identification of people at risk of dementia, enabling timely diagnosis and personalised prevention strategies.
The meeting brought together members of the European Public Ambassador Group, established by Alzheimer Eu-rope and led by Sarah Campill, Public Involvement Officer; the Norwegian WiseAge group, established by SESAM (Centre for Age Related Medicine, Stavanger University Hospital) and led by Elin Thuen; and a representative of the Spanish Consejo de Oro, coordinated by Laura Ferré González from the La Fe Health Research Institute in Valencia. This session offered an opportunity to reflect on how these groups’ contributions have shaped project approaches, participant facing materials, and other key outputs.
Following a presentation by Anna Katrine Brem and Zunera Khan, participants were invited to ask questions and discuss developments in more depth. The team highlighted how advisory group recommendations have been incorporated and addressed areas where limitations remain. Being open about such limitations is essential for maintaining trust and supporting meaningful Public Involvement. Members ex-pressed their appreciation for ongoing opportunities to stay updated, understand how their input is used, and see the evolving impact of their involvement throughout the project’s lifecycle.
To learn more about Public Involvement in PREDICTOM and the different advisory groups involved, please visit:
www.predictom.eu/public-involvement-user-impact-in-predictom
This project has received funding from the Innovative Health Initiative Joint Undertaking under Grant Agreement No. 101132356. This Joint Undertaking receives support from the European Union’s Horizon Europe research and innovation programme, COCIR, EFPIA, EuropaBio, MedTech Europe and Vaccines Europe. UK participants are supported by UKRI, and the Swiss participant is supported by the Swiss State Secretariat for Education, Research and Innovation.
