During the month of November, PARADIGM organised several sessions to engage with patient communities and further disseminate the tool-box and other work developed by the project. Three informative Q&A sessions took place on 9, 16 and 20 November. The sessions were organised as a forum for patients from the different Patient Organisations involved in the project to learn about the tools and to engage in discussions about how to use and implement them. The following topics were addressed:
9 November
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Recommendations on required capabilities for patient engagement
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Patient engagement in medicines development: Recommendations on how to find the right match for the right patient engagement activity
16 November
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Patient Engagement Monitoring and Evaluation Framework
20 November
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Working with Community Advisory Boards: Guidance and tools for patient communities and pharmaceutical companies
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Guidance for reporting and dissemination of patient engagement activities.
In addition, the two last sessions of the Patient Engagement Open Forum (PEOF) were held this month. The first session, on 5 November (pictured), focussed on the topic of patient engagement in regulatory bodies. During the session, the differences and similarities in regulatory requirements, as well as challenges and opportunities for increased patient engagement were presented. There were also some discussions about how COVID-19 has affected the regulatory work and its potential implications for the patient community. The second session, on 23 November, was dedicated to changes in the field of patient engagement over the past three years and to “gaps” in patient engagement; both those which were addressed by the PARADIGM project and those gaps and challenges that still remain.
Alzheimer Europe has been actively involved in this work and attended all the sessions. All PEOF sessions have been recorded and can be accessed at: https://patientengagementopenforum.org
