Alzheimer Europe would like to invite individuals who are affected by or interested in dementia and brain health to join its new European Public Involvement pool. This platform allows members of the public (excluding health and social care professionals and service providers) to share their views on various research-related topics and projects. People will be invited to participate in online or in-person consultations, focus groups, written discussions and brief surveys.
What is public involvement?
To ensure that research accurately reflects the preferences, needs and priorities of members of the public, their perspectives - including experiences and concerns - need to be included in different aspects of research processes and outputs/results. Public Involvement (PI) has been shown to improve the quality of research by enabling researchers to benefit from the lived experience of people with dementia. Also, it helps ensure that research is ethical, transparent and gives people with dementia a voice, reflecting the principle of “nothing about us without us”.
What can you expect from joining?
By joining this pool, members of the PI Pool will have the opportunity to provide input on different aspects of ongoing European research initiatives (e.g. on new technologies and artificial intelligence-based approaches to dementia prevention or management, palliative care, dementia risk prediction etc.)
We particularly welcome:
• people with dementia
• people at higher risk of dementia or with memory or other cognitive problems
• carers, supporters or family members of people with dementia
• Additionally, we are very keen to include the perspectives of members of minority and marginalised groups and cultures (such as people from minority ethnic groups, from the LGBTQ+ community or living in rural areas or residential care settings).
Find out more here: https://www.alzheimer-europe.org/research/public-involvement/alzheimer-europe-public-involvement-pool
