The European Dementia Carers Working Group (EDCWG) brings together current and former carers of people with dementia from across Europe, providing a platform to ensure that carers’ perspectives are reflected in Alzheimer Europe’s activities.
On Tuesday, 19 May, members of the EDCWG met online to discuss a range of topics, including their involvement in the upcoming Alzheimer Europe Conference in Dublin (27-29 October 2026), the forthcoming end of the current term of the EDCWG and the re-nomination process for members. During the second part of the meeting, members reviewed the Alzheimer Europe Clinical Trials Watch webpage (https://www.alzheimer-europe.org/research/clinical-trials), which was first developed over a decade ago to provide a clear, accessible overview of clinical trials for people with dementia and their carers. The resource offers up-to-date, dementia-friendly information on clinical studies, including details on the type of intervention, trial phase, recruitment status and participating countries, helping users better understand ongoing research and opportunities to take part. The discussion focused on how to further improve the resource to better meet the needs of its users.
The meeting was facilitated by Ana Diaz (Public Involvement Lead) and Sarah Campill (Public Involvement Officer) and chaired by EDCWG Chairperson Trevor Salomon (United Kingdom).
