The first in-person meeting of the Portuguese Working Group of People with Dementia was held on 20 March 2026. The agenda included several key items, namely the election of the group’s Chair and Vice-Chairperson. It was a long way till it was possible to achieve this important goal of Alzheimer Portugal!
The Working Group currently consists of only four members (all women), and applications remain open for additional members who wish to contribute their experience and perspective. The first meeting of the group took place online in May 2025, and since then, meetings have been held on a regular basis in an online format.
The establishment and ongoing activities of the Portuguese Working Group of People with Dementia are supported institutionally and financially by PPD, part of the Thermo Fisher Scientific group.
Alzheimer Portugal remains committed to developing and delivering a range of services and activities specifically designed for people in the early stage of dementia. These initiatives aim to support their emotional well-being while enabling opportunities for self-expression, empowerment and active participation in society.
In this context and inspired by the example of the Alzheimer Europe Working Group, Alzheimer Portugal has established the Portuguese Working Group of People with Dementia. This initiative reflects the principle “Nothing about us without us”, ensuring that the voices and lived experiences of people with dementia are represented and helping to challenge stigma, misconceptions and discrimination associated with the condition.
Alzheimer Portugal recognises the invaluable contribution that people living with dementia can make in shaping policies, activities and initiatives that affect their lives. Their participation helps ensure that the organisation represents their interests effectively.
The primary objective of the Working Group is to ensure that the Association’s programmes, activities and strategic initiatives reflect the priorities, perspectives and experiences of people living with dementia. In addition, the group may contribute to consultations, initiatives and projects led by external organisations that aim to improve the quality of life, inclusion and rights of people with dementia.
