Alzheimer Hellas partners in new project InfoCARE - Supporting Informal Caregivers of People with Dementia

28/06/2022

The Panhellenic Federation of Alzheimer’s Disease and Related Disorders (Alzheimer Hellas) is participating in a new and exciting Erasmus+ funded project. InfoCARE has a two-year duration and aims to support informal carers by providing them with non-formal education on dementia, innovative devices to improve social interaction and by creating a network between informal carers through support groups. The InfoCARE consortium consists of five partners coming from five different countries across Europe. Specifically, the countries/organisations involved are Spain (Foundation Sorapan de Rieros) which is the leading organisation, Austria (Austrian Association of Inclusive Society), Greece (Greek Association of Alzheimer’s Disease and Related Disorders), Turkey (EURASIA Innovative Society Association) and Denmark (Danish Committee for Health Education). Families, adults and legal guardians, the informal carers, are largely the main care providers for people with dementia. Informal carers are often associated with higher levels of stress, more depressive and anxiety symptoms and lower levels of subjective well-being when compared to non-carers.

The lockdown and the restrictive measures imposed due to the COVID-19 pandemic have amplified the physical, emotional and economic burden of informal carers of people with dementia. Partner countries will develop a set of four modules on cognitive activities for people with dementia, to provide informal carers with training on coping with the cognitive deterioration of the people they are supporting. The activities will be adapted to allow the implementation in a remote format using innovative devices, when being physically present is not possible, i.e. distance caring. The hope is that, by creating a network of informal carers, this will provide a support group which can serve as a collective coping tool for both psychological support and for sharing experiences and best practices. Each partner country will recruit at least 15 participants, for a total of 75 participants to pilot each project result in order to test and optimise the outcome of the project.