On 15 and 16 January, the AI4HOPE project consortium, including Alzheimer Europe (AE), convened in Bonn, Germany, to share progress and plan future actions for developing digital palliative care solutions for dementia across the EU. Discussions covered the development of legal and ethical frameworks for data collection and sharing across consortium members, and the digital infrastructure necessary to ensure secure and private sharing of clinical data. Discussions also involved selecting adequate tracking devices to monitor physiological processes involved in palliative dementia care, planning submission of the research protocol for ethics review, and preparing research in clinical sites. As part of this meeting, AE delivered a presentation on Public Involvement and communication activities for the project.
AE also met with representatives of the European Association for Palliative Care to further develop an information toolkit, offering palliative care guidance for people with dementia, carers, and healthcare professionals. Finally, AE planned future activities with consortium members including review of the AI4HOPE research protocol by the European Working Group of People with Dementia and the European Dementia Carers Working Group in the first semester of 2025. Overall, the event was a great opportunity to foster collaboration and plan future activities for AI4HOPE among consortium members. AE Public Involvement Director Dianne Gove, Public Involvement Officer Sebastien Libert and Project Officer Lukas Duffner participated in the event. For more information about the AI4HOPE project, visit: https://www.ai4hope.eu/