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Alzheimer Europe’s Research Insights - Data Sharing in Dementia Research

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2026 will see the launch of Alzheimer Europe’s Research Insights, a public webinar series focused on new developments and topics in research. Research Insights are interactive webinars bringing together academic and industry researchers, clinicians, national Alzheimer organisations, policymakers and the wider dementia community, to exchange knowledge on cross-cutting research topics. Through these, Alzheimer Europe aims to increase the visibility and impact of European research projects, support collaboration across consortia, and raise awareness of research developments in the European dementia community.

Each session will be hosted on Zoom, moderated by Alzheimer Europe, and will combine short presentations from selected projects and initiatives with a panel discussion and audience Q&A. Recordings will be made publicly available afterwards, via Alzheimer Europe’s YouTube channel.

Our first Research Insights session will take place on 22 April from 14.00 to 16.00 CET and address the what, why and how of data sharing in dementia research, illustrating practical approaches, platforms and use cases, alongside perspectives from lived experience. Data sharing can make better use of existing datasets, support collaboration across disciplines and countries, and speed up progress in dementia research - but it also raises challenges linked to data protection, technical barriers and differences in how data are managed.

Research insights

Data Sharing in Dementia Research

22 April 14:00-16:00 CET Online
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14:00-14:05

Welcome and introductory remarks

Angela Bradshaw (Alzheimer Europe)

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14:05-14:15

Data sharing: perspective from lived experience

Patrick Crosbie (Member of the European Dementia Carers Working Group)

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14:15-14:30

The Alzheimer Europe report on research participation and data sharing

Lukas Duffner (Alzheimer Europe)

Questions to Lukas (5 minutes)

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14:30-14:45

How data sharing can advance dementia research: the EPND platform

Matt Clement (Gates Ventures)

Questions to Matt (5 minutes)

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14:45-15:00

The PROMINENT project: integrating data to support clinical decision-making

Linus Jonsson (Karolinska Institutet)

Questions to Linus (5 minutes)

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15:00-15:15

The eBRAIN-Health project: brain simulations and digital twins

Petra Ritter (Charité)

Questions to Petra (5 minutes)

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15:15-15:30

The AD-RIDDLE project: algorithms for personalised prevention

Alina Solomon (University of Eastern Finland)

Questions to Alina (5 minutes)

15:30-15:50

Panel discussion and audience Q&A

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15:50-16:00

Closing comments

Angela Bradshaw (Alzheimer Europe)