Alzheimer’s disease is one of the biggest public health challenges of our time impacting millions of people and
their families around the world. The care and support for people living with Alzheimer’s disease and their care
partners is extremely complex and its provision is challenging.
In this context, clinical research in Alzheimer’s disease is more important than ever. However, for a variety
of reasons clinical trials can be challenging for people living with Alzheimer’s disease and their study partners,
making recruitment and participation difficult.
Building on this insight, the Finding Alzheimer’s Solutions Together Council (F.A.S.T. Council) came together
to create a comprehensive guidebook that supports clinical trial design and management to encompass the
needs of participants and their study partners.
This report brings the learnings from this guidebook to a wider audience. The content is aimed at researchers,
industry members, patient advocacy groups, and the Alzheimer’s disease community to help them:
- Better understand people living with Alzheimer’s disease, their family members and care partners, as well
- as their journeys and the challenges traditionally faced in clinical research
- Design, set-up, recruit for, conduct and follow-up after clinical trials for Alzheimer’s disease, including
- guidance on retention barriers and potential solutions
- Improve the way that research is carried out for Alzheimer’s disease
- Increase the inclusivity of non-Alzheimer’s disease trials to people living with Alzheimer’s disease and their
- care partners