A paper on the ethics of predictive modelling in Alzheimer’s Disease (AD), authored by the ROADMAP project’s ethics work package (WP8) has been accepted for publication in The Journal of Alzheimer’s Disease. ROADMAP ran from September 2016 till October 2018 and Alzheimer Europe was a partner in this project. Dianne Gove, Director for Projects, Alzheimer Europe co-authored this new publication. We will be sure to share the link once it has been published online.
The “Real world Outcomes across the Alzheimer’s Disease spectrum for better care: Multi-modal data Access Platform” (ROADMAP) project aimed to provide the foundation for an integrated data environment and framework for real-world evidence (RWE in Alzheimer’s disease). This included the development of consensual key outcome measures and enabling data integration tools for dataset characterisation and outcome classification, as well as guidelines on the handling and interpretation of RWE data.
