The European Institute for Innovation through Health Data (I~HD) and the Digital Health Society (DHS) recently announced the launch of two programmes for 2021, following on from their 2020 roundtables on health data systems. As part of the first programme, "Proposing a common basis for data access across Europe", I~HD and DHS hosted a virtual plenary session on 11 May, aimed at exploring and developing a draft basis for health data access across Europe.
The plenary was kicked off by Markus Kalliola of TEHDAS (Towards a European Health Data Space), who provided an overview of the TEHDAS joint action, which is aiming to develop joint European principles for the secondary use of health data. The objective of the second part of the session, which was co-moderated by Bleddyn Rees and Carina Dantas of DHS and Angela Bradshaw of Alzheimer Europe, was to identify the key questions to consider in developing a social compact for health data use and sharing, including the return of value from health data use. Plenary participants included representatives of patient organisations, healthcare providers, researchers, data protection experts and industry associations. This introductory plenary will be followed by small Working Group meetings, culminating in a final plenary session in late June.
