PFMD, EUPATI and EPF organise a forum on Patient Engagement and Patient Involvement in different areas of clinical and research practice

11/10/2022

On 3–5 October (Barcelona, Spain), the Patient Focused Medicines Development (PFMD), the European Patients’ Academy (EUPATI) and the European Patients' Forum (EPF) organised the Patient Engagement Open Forum (PEOF) on the topic of Patient Engagement (PE) and Patient Involvement (PI) in different areas of clinical and research practice. Patients, and representatives from patient organisations, academia and industry with an interest in the topic gathered together to work towards a systematic implementation of PE and PI in healthcare research. During the three days of the PEOF, the sessions focused on engagement of young patients in clinical trials, PE in pre-clinical research and post-launch activities of product development, collaboration platforms for PE, PI in health technology assessment and methods to gather experiences of patients, among others. The presentations around these topics highlighted the work patient groups are doing and the challenges that still need to be overcome. Soraya Moradi Bachiller represented Alzheimer Europe at this event.