On 12 May, PARADIGM organised three parallel online workshops. The workshops aimed to provide the opportunity for participants from CEE countries to give feedback and shape the thinking about the patient engagement tools that PARADIGM is currently developing. The workshops focused on three topics:
• The development of the roadmap to making the patient engagement ecosystem sustainable;
• The recommendations on the capacity and capabilities to make patient engagement a greater reality;
• The development of the monitoring and evaluation framework to assess the value of patient engagement activities.
The session on capacity and capabilities was co-facilitated by EURORDIS and AE. During the session, participants highlighted some of the existing challenges which may affect patient engagement capabilities (e.g. lack of knowledge and resources, political instability and paternalistic approaches to patient engagement) and explored the relevance of the proposed capability framework for the CEE region. It was concluded that the framework was comprehensive but that to be applicable, it should be flexible, adaptable and affordable. Capabilities to meaningfully involve patients and patient organisations and to ensure the involvement of vulnerable populations were perceived as very valuable. For further information about the three sessions and future related events please see: https://imi-paradigm.eu/cee-patient-engagement-conference-transferability-workshops-report/
AE Project Officer, Ana Diaz, attended this event.
