25 January 2023: New report jointly written by George Rook, living with young onset dementia, and Jacoba Huizenga, PhD candidate explores everyday experiences of living with dementia A research report with an overview of everyday experiences of people living with dementia or Mild Cognitive Impairment (MCI) has been published, see https://www.mdpi.com/1804610 This scoping review aimed to explore the everyday life experiences, challenges and facilitators of individuals with dementia and MCI living at home. 58 qualitative studies were included. The review shows that the change from a clinical care focus to a broader focus on all aspects of everyday life opened rich insights into the insider’s perspective of people living with dementia, but the question was: how to share this scientific publication with a broader audience?
Researcher Jacoba Huizenga shared this research report with George Rook, one of the Dementia Enquirers. She met him, together with other pioneers, during a mini internship for early career researchers, organised by Innovations in Dementia. George Rook read the paper and responded: “What a wonderful, interesting paper. You have brought together so much of what ‘we’ need to know in order to move support forward. I am going to recommend that all professionals involved in dementia and related social care read it.” Together they produced an accessible version, specifically aimed at professionals. George Rook also wrote a foreword. This accessible version can be read here:
