On 19 October, members of the PREDICTFTD Public Involvement Board (PREDICTFTD-PIB) met online with Margarita Reyes (Project Officer, Alzheimer Europe) and Soraya Moradi-Bachiller (Public Involvement Officer, Alzheimer Europe) for a consultation to help develop educational materials on Frontotemporal dementia (FTD) as part of the PREDICTFTD project.
The PREDICTFTD-PIB brings together people living with FTD and carers or supporters of people affected by the condition. During the consultation, members shared their valuable perspectives and experiences to inform the development of three infographics targeting the general public, carers and supporters, and employers. They also provided feedback on video recordings addressing common misconceptions about FTD and discussed the possibility of organising a webinar focusing on the experiences and needs of children and young people whose parent has been diagnosed with young-onset dementia.
The PREDICTFTD project was launched in December 2024, funded by the EU’s Horizon Europe programme for a period of 4.5 years. The project, which includes partners from 8 countries, is developing biomarkers and tools to advance the diagnosis of FTD, aiming to reduce the time it takes to obtain an accurate, biological diagnosis of the condition.
Learn more about PREDICTFTD: https://www.predictftd.eu/
