Joint Heads of Medicines Agencies (HMA)/European Medicines Agency (EMA) multistakeholder workshop on Patient Registries for Alzheimer's disease

13/10/2025

The European Medicines Agency (EMA) opened registration for online participation in the upcoming joint EMA and Heads of Medicines Agencies (HMA) multistakeholder workshop on patient registries for Alzheimer’s disease. The hybrid event will take place on 15 December 2025, broadcast live from Amsterdam. The workshop will bring together representatives from regulatory bodies, academia, healthcare, patient organisations, and industry to discuss how patient registries can support the long-term follow-up of Alzheimer’s disease treatments and generate meaningful real-world data. Participants will address evidence gaps, core data elements, data governance, and approaches to interoperability and collaboration between stakeholders. The deadline to register for in-person participation is 15 October, while registration for active online participation via Webex closes on 28 November. Those who wish only to follow the discussions can do so via the live broadcast without registration. Further details and the registration form are available here:

https://www.ema.europa.eu/en/events/joint-heads-medicines-agencies-hma-european-medicines-agency-ema-multistakeholder-workshop-patient-registries-alzheimers-disease