The EU-funded Joint Action, Towards the European Health Data Space (TEHDAS), is running a consultation for European citizens to find out what they think about how their health data could be used in the future. Currently, health data is mainly used and shared among healthcare professionals to provide care treatment, however, it is indispensable for research to prevent and cure diseases and manage public health crises more effectively in the future.
TEHDAS is seeking views on how health data could be used in the future, including who could use it and for what purpose. The results of the consultation will support recommendations made by the TEHDAS project to the European Commission and to the member states on how the public should be involved in health data use and sharing. The consultation is available in English, French and Dutch. The consultation runs until 4 April 2022.