European Patients’ Forum responds to European Commission’s call for feedback on European Health Data Space


The European Patients’ Forum (EPF) has published its response to the European Commission’s call for feedback on the European Health Data Space (EHDS). The Commission will summarise all feedback received and present them to the European Parliament and the Council of the EU to inform the legislative debate. The EPF response, drafted in collaboration with member organisations, welcomes this overarching framework for the exchange and sharing of health data while stressing the need for a European Health Data Space shaped with and for patients. This is a unique opportunity for EPF and its members to play an enabling role in data quality and trust, which should be reflected in the regulation. As this call for feedback only allowed a limited response, EPF will develop a more extensive position statement on a patient-centred EHDS to engage with relevant stakeholders throughout the legislative process. Read the full response here: