European Patients’ Forum invites patients and patient organisations to complete new survey on COVID pandemic impact on patients


The European Patients’ Forum (EPF) conducted a COVID-19 survey between 18 September to 18 October 2020 (the report is available here). It aimed to gather more information on the lived experience and impact of the COVID-19 pandemic on patients and patients’ organisations. As the COVID-19 pandemic is not yet over, and it continues to impact the daily life of many patients and patients’ organisations, the EPF has decided to do a follow-up survey. This time, the survey is presented as two separate questionnaires. One for patients’ organisations and another for individual patients:

• The survey for patients’ organisations (in English only) is accessible here. EPF kindly asks that only one staff member per organisation completes the survey.

• The survey for individual patients (available in English, French, German, Spanish and Italian) is accessible here.

To change the language, simply select your preferred one in the top-right corner of the page. For questions on any of these surveys contact EPF Policy Officer Juan Jose Fernandez Romero ( The survey for individual patients is done within the scope of the Periscope project, of which EPF is a consortium member. The deadline for both these surveys is 25 September at 23.59 (CEST).