European Patients’ Forum Congress held in Brussels


The European Patients’ Forum (EPF) held its in-person European Congress during on 23 and 24 June. The event took place in Brussels, at DoubleTree by Hilton Hotel, but was also partially live streamed, for those who opted for joining online. Keeping in mind the experience and lessons learned from the 2021 online Congress, this year’s event included a wide audience of patient representatives (including Alzheimer Europe), policymakers, health systems experts, healthcare profession representatives, academics, and industry representatives. The 2022 EPF Congress was dedicated to exchanging ideas and good practices in patient empowerment and involvement, gaining a greater and genuine understanding of the wealth of experiential knowledge and expertise that patients bring to health system design and strengthening, and much more. EPF expressed its heartfelt thanks to Stella Kyriakides, European Commissioner for Health and Food Safety, for delivering the opening keynote speech, which addressed the context for and introduced the principles of the European Health Data Space. Summarising the two Congress days, EPF commented that digitalisation of healthcare can bring enormous gain for patients but also has its share of challenges – inequality, tension with the traditional doctor-patient relationship, consent and ethics. As such, ensuring that digital transformation of healthcare works for patients remains at the top of the EPF agenda. Angela Bradshaw, Project Officer, Alzheimer Europe was a speaker at the event. Her presentation, about the new Data Saves Lives toolkit which was co-created by Alzheimer Europe, is detailed in our EU Projects news section. More information about the EPF Congress can be found, here: