From 12 to 14 November 2019, the EPF Congress took place in Brussels. This was the first European Congress on patient involvement driven by patients. The aim of the Congress was to instigate a narrative of real and lasting change in attitudes, knowledge and resources for participants. The Congress combined key note speeches, panel discussions and interactive parallel working sessions on the main topics of: patient involvement; inclusion, equity and diversity; culture change and leadership; and patients as teachers. The congress was attended by over 300 participants, including a high-level Advisory Board of 12 ambassadors, 69 speakers and a wide range of health stakeholders, ranging from patient representatives, regulatory and HTA experts healthcare professionals and experts, national organisations, representatives from industry, academia, and local governments. Chris Roberts, vice-chair of AE’s European Working Group of People with Dementia was an invited speaker in the panel “Ensuring equity, inclusivity and diversity of the patients’ voice”. From AE, Ana Diaz (Project Officer), Chris Roberts (EWGPWD) and his wife, Jayne Goodrick, attended the Congress.
