Health data, gleaned from sources such as medical records and devices, represents a valuable resource for research, healthcare and policymaking. When used safely, health data can enable faster diagnosis, more effective medical treatments and person-centred care. Increasing the accessibility of health data can also make healthcare services more sustainable, accessible and effective, empowering patients in the management of their conditions.
However, many people have concerns and questions about health data use and sharing. DataSavesLives, a multi-stakeholder initiative aiming to increase public awareness and understanding about health data, is developing new health data resources for patient groups, to help answer these questions and concerns. To ensure these resources meet the needs of different patient communities, DataSavesLives has launched a public survey on health data sharing. Have your say, here: