The Data Saves Lives initiative and website were launched on the opening day of the European Patients’ Forum (EPF) Congress, which is focused on patient involvement and is driven by representatives of the patient community and patient experts. Data Saves Lives is a multi-stakeholder initiative that is led by the EPF and the European Institute for Innovation through Health Data (i~HD). The primary goal of this initiative is to raise wider patient and public awareness about the importance of health data, how it is used in practice and how this can deliver benefits for patients and citizens. Data Saves Lives will establish a trusted environment for multi-stakeholder dialogue about responsible use and good practices across Europe, while empowering patients and healthcare professionals to realise the potential of new sources of data and digital technologies. It will also create resources adaptable for use at national and local level and show real-life examples of how data is used for the benefit of patients. The Data Saves Lives team is now welcoming applications from interested parties to join and contribute to the initiative.
Link to website: https://datasaveslives.eu/