In July 2021, The Alzheimer Society of Ireland launched a new research service in collaboration with Dementia Research Network Ireland – TeamUp For Dementia Research. TeamUp For Dementia Research enables people living with dementia and their family members to register their interest in participating in dementia research. Then, when a relevant research study arises, the person is informed about the opportunity and supported to connect with the research team.
TeamUp For Dementia Research was set up because there is currently no one streamlined way for people living with dementia and their families to find and participate in dementia-related research in Ireland. This has created inequity in access to research opportunities for people affected by dementia and a substantial challenge for research teams.
With less than 0.5% of people with dementia currently participating in research in Ireland, this service aims to increase participation and connect people with opportunities to take part in research in a safe way that puts the people who use our services and the public first.
"Irish people are incredibly altruistic when it comes to dementia-related research and really go above and beyond with their time and energy. The opportunity to participate in research is an important holistic part of living well with dementia. It's important for clinicians and researchers to provide opportunities for people to take part in research and TeamUp For Dementia Research creates this link. Ireland is not accepting the 'status quo' of no treatment or no cure for dementia. We are changing the narrative" said Prof. Sean Kennelly, Dementia Research Network Ireland Chair and Consultant Physician in Geriatric and Stroke Medicine.
"The ASI is delighted to play its part in supporting dementia research by developing this fantastic new service. We want everyone in our communities to have the option of taking part if they wish" enthused Dr Laura O'Philbin, Interim Research & Policy Manager at The Alzheimer Society of Ireland.
"I have signed up for The Alzheimer Society of Ireland's Team-Up for Dementia Research because I believe in the power of research. For me research is more than just finding answers; research brings hope and understanding to people living with dementia and their families. When I took part in my own research, it helped me come to terms with our new way of life and understand my mom more and how she may be feeling. It's for these reasons I think others should be involved in this new initiative" said family carer Alison McCarthy.
"Research brings me hope. As far as I'm concerned, GO RESEARCH" enthused Sean Mackell, living with dementia.
The goals of TeamUp For Dementia Research are:
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To make research more accessible to people living with dementia and their families
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To enhance dementia research in Ireland
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To ensure that more people living with dementia and their families have their voices heard in research
Who can sign up?
TeamUp For Dementia Research is open to people living with dementia and current or former family members who are over 18 and living in the Republic of Ireland.
Support TeamUp For Dementia Research
Please support TeamUp For Dementia Research by spreading the word. Should you wish to display or distribute leaflets please contact teamup@alzheimer.ie to arrange free delivery.
For more information visit www.teamupfordementia.ie
