Alzheimer Europe contributes to newly-published JPND paper “Measuring the well-being of people with dementia: a conceptual scoping review”

24/07/2020

On 24 July, “Measuring the well-being of people with dementia: a conceptual scoping review” was published in online open access medical journal “Health and Quality of Life Outcomes”. The review was authored by the EU Joint Programme – Neurodegenerative Disease Research (JPND). Contributors include Alzheimer Europe Director for Projects Dianne Gove and Project Officer Ana Diaz.

Enabling people with dementia to “live well” is a policy and research priority in many countries. However, instruments for measuring outcomes of psychosocial interventions designed to promote well-being in dementia are often derived from a symptom-focused, loss/deficit approach, or from broad quality of life concepts. Research on the development of an alternative asset/strengths-based conceptual framework of well-being in dementia was needed, said the authors. Their paper takes forward this recommendation by developing such a framework and using this to map relevant self-report outcome measures.

You can access the article, here: https://hqlo.biomedcentral.com/articles/10.1186/s12955-020-01440-x