An article with the findings of a 33-country Delphi study into advance care planning (ACP) in dementia, was recently published in the journal Alzheimer’s & Dementia. Existing ACP definitional frameworks apply to individuals with decision-making capacity. This new study aimed to conceptualise ACP for dementia in terms of its definition and issues that the researchers felt deserved particular attention (capacity, family, engagement, and communication). The article in Alzheimer’s & Dementia offers a consensus definitional framework of ACP in dementia, covering all stages of capacity and including family carers. Fluctuating capacity was visualised in relation to roles and engaging stakeholders. The Delphi panel, composed of around 50 people, included Dianne Gove, Director for Public Involvement and Ethics, Alzheimer Europe. You can read the full article (open access), here:
