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Issues and challenges encountered by professional and informal carers

2018: Intercultural care and support

People from minority ethnic groups are under-represented as recipients of dementia care services but in some areas are largely over-represented as providers of such services (Beattie et al. 2005, Moriarty, Sharif and Robinson 2011). In addition to professional carers from minority ethnic groups already living in a particular country (in many cases having been born and having grown up there), carers with a migratory background are increasingly being employed in Europe as professional carers (Doyle and Timonen 2009). This is especially the case in some European countries with regard to live-in carers for dependent older people, including people with dementia (Ungerson 2003, Degiuli 2007, McGregor 2007, Doyle and Timonen 2009, Romero 2012). Overall, people providing dementia care are more likely to be female, from a minority ethnic group and, if employed, on a temporary contract (Prince et al. 2015).

To date, there has been little research about the personal experience of people from minority ethnic groups who provide dementia care and support, either professionally or informally (e.g. relatives and friends). The experience of care and support is closely linked to the experience of those who provide it. Satisfaction with care and support tends to be greater when it is provided by people who are motivated and skilled, physically and mentally able to provide such care, and feel valued, supported and engaged (Royal College of Physicians 2015).  Consequently, although the wellbeing of the person with dementia must be the central concern when providing care and support, this must be balanced against other concerns related to the wellbeing and rights of other people such as professional and informal carers (Alzheimer Europe 2015).

In this section, we look at the experience and some of the challenges encountered by:

·         Health and social care professionals

·         Informal carers (from minority ethnic groups)

·         Migrant carers (focusing on care professionals with a recent migratory background)

·         Live-in carers (mainly people who have recently migrated to a country)



Last Updated: Thursday 25 March 2021


  • Acknowledgements

    This report received funding under an operating grant from the European Union’s Health Programme (2014-2020) and from the Robert Bosch Stiftung. The content of the report represents the views of the author only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains
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