Other ethical principles
Definitions and approaches
This section examines a few other ethical principles which are equally important when considering the care of people with dementia.
Last Updated: Monday 29 March 2010
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- Dr Miroslav Mikolášik (Slovakia)
- Elena Oana Antonescu (Romania)
- Maria Badia i Cutchet (Spain)
- Heinz Becker (Austria)
- John Bowis (United Kingdom)
- Roberta Angelilli (Italy)
- Frieda Brepoels (Belgium)
- Milan Cabrnoch (Czech Republic)
- Michael Cashman (United Kingdom)
- Nessa Childers (Ireland)
- Ole Christensen (Denmark)
- Brian Crowley (Ireland)
- Joseph Cuschieri (Malta)
- Karl-Heinz Florenz (Germany)
- Françoise Grossetête (France)
- Maria Eleni Koppa (Greece)
- Katalin Levai (Hungary)
- Astrid Lulling (Luxembourg)
- Jan Tadeusz Masiel (Poland)
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- Linda McAvan (United Kingdom)
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- 2012: National Dementia Strategies (diagnosis, treatment and research)
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- 2009: Healthcare and decision-making in dementia
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- 2016: Ethical issues linked to the changing definitions/use of terms related to Alzheimer’s disease
- Foreword
- Preface
- Introduction
- The new AD definitions and the ethical implications of the way we represent health and disease
- Personal identity and personhood
- Ethical issues linked to diagnosis, healthcare and research
- Broader ethical issues at the level of society
- Conclusion
- Our position
- Glossary of terms and abbreviations
- References
- Appendix 1: Acknowledgements
- Appendix 2: More information about the changing definition of AD
- 2015: Ethical dilemmas faced by professionals providing dementia care in care homes and hospitals
- Foreword
- Introduction
- Caring and coping in ethically challenging situations
- Vignettes and commentaries
- Conclusion
- Building an ethical infrastructure – a message to organisations
- References/reading list
- Acknowledgements
- Appendix 1 – Ethical principles, values and related concepts
- Appendix 2 – Short examples to describe ethical theories
- Appendix 3 – Checklist for reflecting on ethical dilemmas and ethically challenging situations
- 2014: Ethical dilemmas faced by carers and people with dementia
- Foreword
- PART 1 - Introduction
- About ethics
- PART 2 - Ethical dilemmas from the first possible signs of dementia onwards
- The period of uncertainty/not knowing (pre-diagnosis)
- The process of understanding/finding out (diagnosis)
- The initial period of adaptation (shortly after diagnosis)
- Living with dementia (getting on with routine life/adapting to challenges)
- Caring for/receiving care (when increased levels of support are needed)
- The possible transition into a care home (when continued care at home becomes problematic)
- Care for a dignified end of life
- PART 3 - Tackling ethical dilemmas
- Establish and maintain an on-going dialogue involving everyone involved or concerned about the particular issue
- Try to understand the issue and seek additional information if needed
- Try to make sense of people’s needs, wishes and concerns (i.e. what is really important to them or bothering them)
- Consider and evaluate the ethical principles and values at stake in relation to the individuals involved (including yourself) and the specific situa...
- Reflect together on possible outcomes which might be good or bad for different people concerned, bearing in mind their lived experiences
- Take a stance, act accordingly and, bearing in mind that you did your best, try to come to terms with the outcome
- Reflect on the resolution of the dilemma and what you have learnt from the experience
- References
- Acknowledgements
- 2013: The ethical issues linked to the perceptions and portrayal of dementia and people with dementia
- 2012: The ethical issues linked to restrictions of freedom of people with dementia
- Preface
- Introduction
- Restriction of the freedom to choose one’s residence or place of stay
- Freedom to live in least restrictive environment
- The restriction of the freedom to act according to individual attitudes, values and lifestyle preferences
- The restriction of the freedom to play an active role in society
- Formal acknowledgements and disclaimer
- Appendices
- Glossary
- References
- 2011: Ethics of dementia research
- The dementia ethics research project
- Background, definitions and scope
- Involving people with dementia
- Informed consent to dementia research
- Protecting the wellbeing
- Risk, benefit, burden and paternalism
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- Epidemiological research
- Genetic research
- Research into end-of-life care
- The donation of brain and other tissue
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- Glossary
- Annexes
- References
- 2010: The ethical issues linked to the use of assistive technology in dementia care
- 2009: Advance directives and personhood
- 2008: End-of-Life care for people with dementia
- 2017: Dementia as a disability? Implications for ethics, policy and practice
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- Barcelona 2018
- Detailed programme and abstracts
- PL1. Dementia as a policy priority
- PL2. Dementia as a human rights priority
- PL3. Dementia as a care priority
- PL4 Dementia as a research priority
- P1. Policies and strategies: Dementia strategies
- P2. Genetics, prevention and treatment: Genetics, modifiable risk factors and prevention
- P3. INTERDEM Academy: The road to success for high impact writing in psychosocial research – tips and tricks
- P5. Care approaches: Art and dementia
- P6. Care services: Home care
- P7. Rights and dementia-friendly society: Involving people with dementia
- P8. CEAFA/FAE: La persona cuidadora
- P9. Policies and strategies: Awareness campaigns
- P10. Genetics, prevention and treatment: Managing behavioural and psychological symptoms of dementia
- P11. INTERDEM: Interdisciplinary research in dementia: interaction between biological and psychosocial factors in the onset and the course of dementia
- P13. Care approaches: Dementia-friendly initiatives
- P14. Care services: Acute and hospital care
- P15. Rights and dementia-friendly society: Involving people with dementia II
- P16. CEAFA/FAE: Empoderando a las personas con Alzheimer
- P17. Policies and strategies: Cost/funding of dementia research and care
- P18. Genetics, prevention and treatment: Nutrition
- P19. INTERDEM: Symposium on implementations of technologies to support people living with dementia and carers
- P21. Care approaches: Palliative care
- P22. Care services: Day care and respite care
- P23. Rights and dementia-friendly society: Disability and human rights approaches
- OP1. Care and treatment
- OP2. Dementia-friendly society and rights
- PO1. Policies and strategies
- PO2. Care approaches
- PO3. Care services
- PO4. Rights and dementia-friendly society
- PO5. Genetics, prevention and treatment
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