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Strategic Plan (2016-2020)

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Strategic Plan (2016-2020)

Objective 1: Providing a voice to people with dementia and their carers

Aim: People with dementia and their carers should be full partners in policy development, research and service design.

By 2020, Alzheimer Europe will have:

  • Involved people with dementia and carers in all its activities
  • Further developed its European Working Group of People with Dementia to advise the organisation on the priorities of people with dementia
  • Clearly defined the roles and responsibilities of the European Working Group of People with Dementia in consultation with its members
  • Supported national Alzheimer associations interested in setting up national working groups of people with dementia
  • Identified techniques to assess the views of people with dementia for the organisation’s participation in European research projects
  • Ensure that all working groups set up by the organisation will have representation from people with dementia and their carers
  • Fully involved people with dementia and their carers in the organisation of its Annual Conference
  • Featured personal testimonies of people with dementia and carers in its Annual Conference and the organisation’s newsletter and magazine.

Objective 2: Making dementia a European priority

Aim: All European countries should have a comprehensive dementia strategy and the European Union should develop a European Action Plan

By 2020, Alzheimer Europe will have:

  • Partnered with the new Joint Action on Dementia
  • Improved its collaboration with all European institutions: the European Parliament, the European Commission and the Council of Ministers and worked proactively with the Presidencies of the European Union to have dementia recognised as a priority
  • Further developed the European Alzheimer’s Alliance with Members of the European Parliament from all EU Member States and all political groups
  • Updated Members of the European Parliament about its activities and EU and national policy development through the organisation of lunch debates and the publication of the Dementia in Europe magazine
  • Organised a week long exhibition in the European Parliament
  • Updated its policy programme based on the organisation’s Paris and Glasgow Declarations
  • Developed a European Action Plan on Dementia and a model national dementia strategy to lobby European and national policy makers
  • Monitored the development and implementation of national dementia strategies
  • Compared dementia policies and presented the results in its Dementia in Europe Yearbook together with identified best practices
  • Actively involved its member organisations in policy development and campaigning through its Public Affairs Committee and updated its public affairs strategy
  • Used the 2019 European Parliament elections to launch a European Dementia Manifesto in collaboration with its member organisations
  • Collaborated with Alzheimer’s Disease International for the recognition of dementia as a global priority at G7, G20, OECD and WHO level.

Objective 3: Promoting a rights based approach to dementia

Aim: Policies and research for people with dementia and their carers should be based on ethical principles

By 2020, Alzheimer Europe will have:

  • Developed its European Dementia Ethics Network by ensuring ethicists and health care professionals with an interest in ethics are duly involved in the organisation’s Expert Advisory Panel
  • Identified on an annual basis and in collaboration with its members and Expert Advisory Panel, key ethical issues on an annual basis for which to carry out a literature review and produce recommendations
  • Collaborated with Alzheimer’s Disease International on an analysis of how the principles enshrined in the UN Convention on the Rights of Persons with Disabilities can be applied to persons with dementia
  • Campaigned for the recognition of dementia as a disability
  • Developed its relationship with the Council of Europe and collaborated with its Committee on Bioethics
  • Updated its national reports on the legal rights of people with dementia and their carers (legal capacity, proxy-decision making, consent, restrictions of freedom)
  • Campaigned for the ratification of the Hague Convention for the International Protection of Adults.

Objective 4: Supporting dementia research

Aim: Alzheimer Europe should become a trusted partner to represent the views of people with dementia and their carers in European dementia research

By 2020, Alzheimer Europe will have:

  • Promoted a holistic approach to dementia research
  • Campaigned for increased funding for dementia research at EU and national level and for greater collaboration between European countries in the field of research
  • Developed closer ties with the Joint Programme Neurodegenerative Disease Research (JPND) and the Innovative Medicines Initiative (IMI)
  • Provided updates on scientific developments in its newsletter and on its website
  • Produced an Annual Research Digest summarising key scientific developments
  • Worked with its Expert Advisory Panel to provide comments on breaking research news
  • Developed partnerships with European organisations of healthcare professionals and researchers
  • Proactively identified funding opportunities for European research projects and collaborated in the development of research proposals
  • Represented the views of people with dementia and their carers in European research projects
  • Contributed to the discussion of ethical issues raised by EU research
  • Disseminated information on European projects it is involved in to its member organisations and the general public, via its conferences, newsletters and website
  • Organised Annual Conferences giving the opportunity to researchers to present scientific findings
  • Continued its involvement with the European Medicines Agency as an active member of the Patients’ and Consumers’ Working Party.

Objective 5: Strengthening the European dementia movement

Aim: Policy makers and researchers should fully involve Alzheimer Europe and its national member organisations in their activities.

By 2020, Alzheimer Europe will have:

  • Organised annual Alzheimer’s Association Academies on issues identified as priorities by national Alzheimer associations
  • Involved all its member organisations in the ongoing evaluation of its activities
  • Revised its communication strategy and improved the information exchange with its member organisations through its monthly e-mail newsletter and website
  • Updated its newsletter and website
  • Established Alzheimer Europe Conferences as unique networking opportunities
  • Expanded its membership to all countries of the European Union with a view to reaching all countries belonging to the European region of the World Health Organisation
  • Developed a networking strategy to improve the collaboration and create strategic partnerships with the broader dementia community
  • Diversified the organisation’s funding through a mix of private and public contributions, as well as support from its member organisations.



Last Updated: Tuesday 06 October 2020