On 26 February and 3 March, the members of the PREDICTFTD Public Involvement Board (PREDICTFTD-PIB) gathered online with Matthias Hofer, Henry Fong and Matthew Napier from the Office of Health Economics (OHE) and Soraya Moradi-Bachiller (Public Involvement Officer at Alzheimer Europe) for a consultation on the topic of the value of a faster and more accurate diagnostic tool developed in the PREDICTFTD project. The PREDICTFTD-PIB, which includes people living with Frontotemporal dementia (FTD) as well as carers or supporters of a person with FTD, offered valuable insights and contributions to this topic. Their feedback included their views on how the confirmed diagnosis of FTD impacted them and their family, the diagnostic journey and how an accurate and early FTD diagnosis might change access to care and support, their family situation and their emotional well-being, among others.
The PREDICTFTD project was launched in December 2024, funded by the EU’s Horizon Europe programme for a period of 4.5 years. The project, which includes partners from 8 countries, is developing biomarkers and tools to advance the diagnosis of FTD, aiming to reduce the time it takes to obtain an accurate, biological diagnosis of the condition.
Learn more about PREDICTFTD: https://www.predictftd.eu/
