On 14 May, Prof. Nikolaus Forgó of the University of Vienna hosted a livestreamed webinar on the legal and contractual aspects of clinical data sharing in the VirtualBrainCloud (TVB_Cloud) project. Prof. Forgó and his team in Vienna lead the legal and ethical workpackage of TVB_Cloud, partnering with Alzheimer Europe. The TVB_Cloud project aims to create a cloud-based platform for targeted, precise prevention, diagnosis and prognosis of neurodegenerative diseases such as Alzheimer’s disease. Data protection forms a key part of the project, as the platform will be built around sensitive, personal data from clinical research participants and patients.
The webinar was aimed at providing an overview of the key legal and contractual frameworks that will regulate data sharing in TVB_Cloud. Emily Johnson kicked off the webinar by outlining the core data protection concepts, after which Michael Cepic highlighted the different contractual structures and agreements for data sharing. Mariana Rissetto closed the webinar by presenting the data sharing workflow for TVB_Cloud, which includes identifying data availability and access mechanisms, setting up secure data transmission modalities, followed by data storage and, where necessary, data deletion. The webinar can be found here:
https://www.youtube.com/watch?v=X4bX3EfoSsU&feature=youtu.be