Last month, the eBRAIN-Health project hosted one of its quarterly General Assembly meetings, which was attended by Angela Bradshaw (Director for Research) and Daphné Lamirel (Public Involvement Officer). These meetings, which bring together representatives of the 20 partner organisations in eBRAIN-Health, act as a forum for high-level updates from the various eBRAIN-Health workstreams. The eBRAIN-Health project aims to create an infrastructure for the lawful and transparent sharing of brain data, with the goal of building virtual representations of the brain to improve research and clinical management for brain conditions such as Alzheimer’s disease. AE is involved in several work packages of the project, conducting activities related to communication and dissemination, public involvement, and ethics.
The Coordinator of the eBRAIN-Health project, Prof. Petra Ritter, started the meeting by presenting an overview of project progress. The leading partners of each work package presented updates on their activities, which encompass technical development of the eBRAIN-Health research platform, contracting and GDPR compliance work for clinical research data, and work on public outreach and involvement. Angela outlined plans to present the eBRAIN-health project at the upcoming AE conference in Geneva, and Daphné detailed recent discussions from the eBRAIN-Health Patient and Public Advisory Group, which addressed the topics of consent and risk communication. Drawing the meeting to a close, Prof. Ritter thanked attendees for their active engagement and discussions. Learn more about the eBRAIN-Health project: