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European Working Group of People with Dementia - EWGPWD

Who we are

The European Working Group of People with Dementia - EWGPWD - is composed of people with dementia. They work to ensure that the activities, projects and meetings of Alzheimer Europe duly reflect the priorities and views of people with dementia. The group operates independently, with its own Board and agenda of activities. The Chairperson of the EWGPWD also sits on the Board of Alzheimer Europe.

In April 2012, the group met unofficially in Glasgow. This meeting was organised by Alzheimer Europe together with Alzheimer Scotland and the Scottish Dementia Working Group. It was attended by nine people with dementia, their carers and 20 delegates from the national Alzheimer associations of Austria, Bulgaria, Norway, Slovenia and Spain. The participants laid the foundations of the EWGPWD and planned its first official meeting.

The first official EWGPWD meeting took place in Vienna in October 2012, alongside the 22nd Alzheimer Europe Conference. The participants elected a Board consisting of a Chairperson and three Vice-Chairpersons, discussed the organisation of the Group and prepared an agenda of activities. The next day, Helga Rohra, first Chair of the EWGPWD, joined the Board meeting of Alzheimer Europe as a permanent member with full voting rights.

The EWGPWD continues to meet on a regular basis and the group's conclusions and recommendations are often on the agenda of Alzheimer Europe Board meetings.

Top row (L-R): Agnes, Alv, Bojan (left December 2015)

Middle row (L-R): Helen, Helga, Hilary

Bottom row (L-R): Karin, Nina, Raoul (left June 2016)



Last Updated: Wednesday 21 September 2016