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Alzheimer Europe
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Dementia
A-Z of dementias
Alzheimer's disease and Alzheimer's dementia
Who is affected by Alzheimer's disease?
Is Alzheimer's disease hereditary?
Is there a test that can predict Alzheimer's disease?
How is Alzheimer's disease diagnosed?
Is there any treatment for Alzheimer's dementia
Other forms of dementia
Neurodegenerative diseases
Familial Alzheimer's disease
Dementia with Lewy Bodies (DLB)
Dementia in Parkinson's disease (PDD)
Fronto-Temporal Degeneration
Progressive Supranuclear Palsy (PSP)
Corticobasal degeneration (CBD)
Argyrophilic Grain Disease (AGD)
Multiple System Atrophy (MSA)
Amyotrophic Lateral Sclerosis (ALS)
Ataxias
Huntington's Disease (HD)
Down syndrome
Familial British dementia
Infectious diseases
Human Prion Diseases
Aids Dementia Complex (ADC)
Syphilis
Postencephalitic Parkinsonism (PEP)
Herpes Encephalitis
Metabolic diseases
Thyroid disorders
Neuro-degeneration with brain iron accumulation type I (NBIA 1)
Cerebral Lipidoses
Dementia in hepatic and renal failure
Dementia due to chronic hypovitaminosis
Metachromatic leukodystrophy (MLD)
Adrenoleukodystrophy (ALD)
Traumatic diseases
Repeated head trauma
Toxic diseases
Wernicke-Korsakoff Syndrome (WKS)
Cerebrovascular diseases
CADASIL
Binswanger disease
Cerebral Amyloid Angiopathy (CAA)
Other rare causes of dementia
Cognitive Dysfunction in Multiple Sclerosis
Normal Pressure Hydrocephalus (NPH)
Living with dementia
COVID-19
Information for people living with dementia
Advice for caregivers and families
Information for minority ethnic groups
COVID-19 and intellectual disabilities
COVID-19 in numbers: epidemiology
COVID-19 and Ethics
Global resources
European Union resources
National resources
General and scientific resources
Mental health resources
After diagnosis - What next?
Diagnosis of dementia
Disclosure of the diagnosis
Facing the diagnosis
Taking care of yourself
Developing coping strategies
Maintaining a social network
Attending self-help groups
Accepting help from others
Dealing with feelings and emotions
Changing roles and how you see yourself
On a more positive note
Organising family support
Dealing with practical issues
Financial and administrative matters
Driving
Safety issues
Employment issues
Healthy eating
Contact and communication
Speaking, listening and communication
Signs, symbols and texts
Personal relationships
Talking to children and adolescents
Changing behaviour
Lack of interest in hobbies
Disorientation
Managing everyday tasks
Keeping an active mind
Services
Caring for someone with dementia
The onset of the disease
Diagnosis: should the person with dementia be told?
Dealing with emotions
Arranging who will be responsible for care
Determining to what extent you can provide care
How will Alzheimer's disease affect independent living?
The needs of younger people with dementia
Memory and Communication
Memory loss
Communication problems
Disorientation
Daily life
Personal hygiene
Dressing
Eating and drinking
Personal relationships
Recreation, activities and exercises
Safety
When the person with dementia lives alone
How to help children cope
Changes in mood
Agitation and nervousness
Anger
Apathy
Brusque changes of mood and extreme sadness or happiness
Feeling depressed/having depression
Hallucinations and paranoid delusions (false beliefs)
Over-reaction
Frustration
Anxiety and fear
Changes in behaviour
Aggressive behaviour
Clinging and following
Embarrassing and odd behaviour
Failure to recognise people
Hiding/losing objects and making false accusations
Repetitive questioning
Sexually inappropriate behaviour
Sleeplessness and night-time wandering
Wandering
Medical and physical issues
Constipation
Dental problems
Eyesight
Fits
Hearing
Incontinence (wetting and soiling)
Jerking movements
Lifting and moving the person with dementia
Loss of co-ordination and manual skills
Pressure sores (bedsores)
Coping with caring
Self-help organisations
Looking after yourself
Caring for the person with dementia in the later stages of the disease
Death and bereavement
Brain tissue donations
Guidelines on continence care for people with dementia living at home
Part 1: About Incontinence, Ageing and Dementia
Part 2: Continence care at home
Acknowledging and coming to terms with continence problems
Management of continence problems
Assessment of continence problems
Addressing the impact of continence problems for people with dementia and carers
Personal experiences of living with dementia
26AEC Copenhagen - a travel diary by Idalina Aguiar, EWGPWD member from Portugal and her daughter Nélida
Letters to Remember (Ireland)
Mojca Hladnik and Matjaž Rižnarič (Slovenia)
Raoul Gröngvist and Milja Ahola (Finland)
Jean-Pierre Frognet (Belgium)
Philip C. (Romania & USA)
Ramona Amariei (Romania)
Paola (Italy)
Helga Rohra (Germany)
James McKillop (Scotland)
A carer from Spain
Hasse and Birgitta Hansson (Sweden)
Stewart Cooper (Luxembourg)
Roger Newman (UK)
Policy
European Alzheimer's Alliance
Members
Alliance activities
February 2018 "The prevention of Alzheimer’s disease (AD) and dementia"
December 2017 "Improving the diagnosis of Alzheimer’s disease thanks to European research collaboration"
June 2017 "Current and future treatment for Alzheimer’s disease and other dementias”
June 2017 MEP Sirpa Pietikäinen hosts roundtable in European Parliament on Alzheimer’s disease
December 2016 "Comparing and benchmarking national responses to the dementia challenge"
September: MEP Ole Christensen praises new Danish national action plan on dementia
June 2016: “Using the UN Convention on the Rights of Persons with Disabilities (UNCRPD) to support the rights of people living with dementia”
December 2015: "Dementia, a priority of two EU Presidencies"
June 2015: “The World Health Organisation and the World Dementia Council and global action on dementia: what role for the European Union?”
December 2014: “Prevention of Dementia: Why & How”
February 2014: "The Innovative Medicines Initiative: improving drug discovery for Alzheimer’s disease"
December 2013: "Comparing and benchmarking national dementia policies"
July 2013: MEP Werthmann hosts a panel discussion on neurodegenerative diseases in the European Parliament
June 2013: "Joint Action on Alzheimer Cooperation Valuation in Europe (ALCOVE)"
February 2013: “Clinical trials on Alzheimer’s disease: update on recent trial results and the new regulatory framework”
December 2012: “Living with dementia: Learning from the experiences of people with dementia”
June 2012: "Alzheimer's disease in the new European public health and research programmes"
February 2012: "IMI in the spotlight" & "Speeding up drug discovery for Alzheimer’s disease: the PharmaCog project"
December 2011: "Public perceptions of Alzheimer’s disease and the value of diagnosis"
June 2011: "The Alzheimer Cooperative Valuation in Europe"
March 2011: "European activities on long-term care: What implications for people with dementia and their carers?"
December 2010: "The Joint Programming of research in Neurodegenerative Diseases (JPND). What progress so far?"
June 2010: “Alzheimer’s disease and dementia as a national priority: contrasting approaches by France and the UK”
September 2009: "European Action on dementia"
March 2009: "Towards a European Action Plan on Alzheimer's disease"
December 2008 "The rising cost of dementia"
September 2008: Launch of Written Declaration
September 2008: "Current and future treatments for AD"
MEPs speak out on dementia
Heinz K. Becker MEP (Austria)
Nessa Childers (Ireland)
Jan Andersson (Sweden)
Tanja Fajon (Slovenia)
Alojz Peterle (Slovenia)
Igor Šoltes (Slovenia)
Patricija Šulin (Slovenia)
Ivo Vajgl ( Slovenia)
Dr. Milan Zver (Slovenia)
Marian Harkin (Ireland)
Marek Plura (Poland)
Deirdre Clune (Ireland)
Dr Miroslav Mikolášik (Slovakia)
Elena Oana Antonescu (Romania)
Maria Badia i Cutchet (Spain)
Heinz Becker (Austria)
John Bowis (United Kingdom)
Roberta Angelilli (Italy)
Frieda Brepoels (Belgium)
Milan Cabrnoch (Czech Republic)
Michael Cashman (United Kingdom)
Nessa Childers (Ireland)
Ole Christensen (Denmark)
Brian Crowley (Ireland)
Joseph Cuschieri (Malta)
Karl-Heinz Florenz (Germany)
Françoise Grossetête (France)
Maria Eleni Koppa (Greece)
Katalin Levai (Hungary)
Astrid Lulling (Luxembourg)
Jan Tadeusz Masiel (Poland)
Marisa Matias (Portugal)
Linda McAvan (United Kingdom)
Claude Moraes (United Kingdom)
Elisabeth Morin-Chartier (France)
Marie Panayotopoulos-Cassiotou (Greece)
Antonyia Parvanova (Bulgaria)
Alojz Peterle (Slovenia)
Sirpa Pietikäinen (Finland)
Frédérique Ries (Belgium)
Dagmar Roth-Behrendt (Germany)
Keith Taylor (UK)
Patrizia Toia (Italy)
Kathy Sinnott (Ireland)
Angelika Werthmann (Austria)
Glenis Willmott (UK)
Corien Wortmann-Kool (Netherlands)
Marina Yannakoudakis (UK)
Anna Záborská (Slovakia)
Dushana Zdravkova (Bulgaria)
Past supporters
European Parliament Elections 2019
EP candidates supporting the #DementiaPledge2019
EU Action on Dementia
2018 European Parliament Written Question on the dismantling of the Commission Expert Group on Dementia
2016 European Parliament Written Declaration
2016 Lunch of 2nd Joint Action on Dementia
2015 European Parliament Written Declaration
2015 Council adopts Luxembourg EU Presidency conclusions
2009 Joint Programming (ongoing)
2009 European Alzheimer's Initiative (ongoing)
2009 European Parliament Written Declaration
2008 Council conclusions on combatting Alzheimer's disease
WHO action on dementia
World Health Organisation (WHO) launches the Global Dementia Observatory ( GDO)
On 29 May 2017, the World Health Organisation (WHO) adopted a global plan on dementia
National Dementia Strategies
Austria
Belgium
Bosnia and Herzegovina
Bulgaria
Cyprus
Czech Republic
Denmark
Finland
France
Germany
Gibraltar
Greece
Ireland
Israel
Italy
Luxembourg
Malta
Netherlands
Norway
Poland
Portugal
Romania
Slovenia
Spain
Sweden
Switzerland
Turkey
United Kingdom (England)
United Kingdom (Northern Ireland)
United Kingdom (Scotland)
United Kingdom (Wales)
Country comparisons
2018: Comparsion of National Dementia Strategies
Introduction
Development and implementation
Human rights and legal matters
Diagnosis, post-diagnostic support
Informal carers
Prevention, DFCs, Awareness
Research
Other themes
Conclusions
Acknow. / References
2017: Standards for Residential Care Facilities
Introduction
Legislative frameworks
Physical environment
Workforce
Provision of care and rights
End-of-life care
Abuse and use of restraint
Conclusions
Acknowledgements
References
Appendix
2016: Decision making and legal capacity in dementia
Austria
Belgium
Bulgaria
Croatia
Cyprus
Czech Republic
Denmark
Finland
France
Germany
Greece
Ireland
Italy
Jersey
Latvia
Lithuania
Luxembourg
Malta
Monaco
Netherlands
Norway
Poland
Portugal
Romania
Slovakia
Slovenia
Spain
Sweden
Switzerland
Turkey
United Kingdom (England)
United Kingdom (Scotland)
2015: Is Europe becoming more dementia friendly?
Austria
Belgium
Germany
Ireland
Netherlands
Norway
United Kingdom
2013: The prevalence of dementia in Europe
Austria
Belgium
Bulgaria
Croatia
Cyprus
Czech Republic
Denmark
Estonia
Finland
France
Germany
Greece
Hungary
Iceland
Ireland
Italy
Jersey
Latvia
Lithuania
Luxembourg
Malta
Netherlands
Norway
Poland
Portugal
Romania
Slovakia
Slovenia
Spain
Sweden
Switzerland
Turkey
United Kingdom (England, Wales and Northern Ireland)
United Kingdom (Scotland)
References
2013: National policies covering the care and support of people with dementia and their carers
Austria
Belgium
Bulgaria
Croatia
Cyprus
Czech Republic
Denmark
Finland
France
Germany
Greece
Iceland
Ireland
Italy
Jersey
Lithuania
Luxembourg
Malta
Netherlands
Norway
Poland
Portugal
Romania
Slovakia
Slovenia
Sweden
Switzerland
Turkey
United Kingdom (England, Wales and Northern Ireland)
United Kingdom (Scotland)
General acknowledgements
Appendix
2012: National Dementia Strategies (diagnosis, treatment and research)
Austria
Belgium
Bulgaria
Croatia
Cyprus
Czech Republic
Denmark
Estonia
Finland
France
Germany
Greece
Hungary
Ireland
Italy
Jersey
Latvia
Lithuania
Luxembourg
Malta
Netherlands
Norway
Poland
Portugal
Romania
Slovakia
Slovenia
Spain
Sweden
Switzerland
Turkey
United Kingdom (England)
United Kingdom (Northern Ireland)
United Kingdom (Scotland)
United Kingdom (Wales)
Acknowledgements
2011: Restrictions of freedom
Austria
Belgium
Bulgaria
Croatia
Cyprus
Czech Republic
Denmark
Estonia
Finland
France
Germany
Greece
Hungary
Iceland
Ireland
Italy
Latvia
Lithuania
Luxembourg
Malta
Netherlands
Norway
Poland
Portugal
Romania
Slovakia
Slovenia
Sweden
Switzerland
Turkey
United Kingdom - England
United Kingdom - Scotland
Acknowledgements
2010: Legal capacity and proxy decision making
Austria
Belgium
Bulgaria
Czech Republic
Denmark
Estonia
Finland
France
Germany
Greece
Hungary
Iceland
Ireland
Italy
Latvia
Lithuania
Luxembourg
Malta
Netherlands
Norway
Poland
Portugal
Romania
Slovenia
Spain
Sweden
Switzerland
Turkey
United Kingdom - England
United Kingdom - Scotland
Acknowledgements
2009: Healthcare and decision-making in dementia
Austria
Belgium
Bulgaria
Cyprus
Czech Republic
Denmark
Estonia
Finland
France
Germany
Greece
Hungary
Iceland
Ireland
Italy
Latvia
Lithuania
Luxembourg
Malta
Netherlands
Norway
Poland
Portugal
Slovakia
Slovenia
Spain
Sweden
Switzerland
Turkey
United Kingdom - England
United Kingdom - Scotland
Acknowledgements
2007: Social support systems
Austria
Belgium
Bulgaria
Cyprus
Czech Republic
Denmark
Estonia
Finland
France
Germany
Greece
Hungary
Iceland
Ireland
Italy
Latvia
Lithuania
Luxembourg
Malta
Netherlands
Norway
Poland
Portugal
Romania
Slovakia
Slovenia
Spain
Sweden
Switzerland
Turkey
United Kingdom - England
United Kingdom - Scotland
2006: Reimbursement of anti-dementia drugs
Austria
Belgium
Bulgaria
Cyprus
Czech Republic
Denmark
Estonia
Finland
France
Germany
Greece
Hungary
Iceland
Ireland
Italy
Latvia
Lithuania
Luxembourg
Malta
Netherlands
Norway
Poland
Portugal
Romania
Slovak Republic
Slovenia
Spain
Sweden
Switzerland
Turkey
United Kingdom
2005: Home care
Austria
Belgium
Bulgaria
Cyprus
Czech Republic
Denmark
Estonia
Finland
France
Germany
Greece
Hungary
Iceland
Ireland
Italy
Latvia
Lithuania
Luxembourg
Malta
Netherlands
Norway
Poland
Portugal
Romania
Slovakia
Slovenia
Spain
Sweden
Switzerland
Turkey
United Kingdom
Our opinion on ...
Wellbeing of people with dementia during COVID-19 pandemic
Dementia Research and COVID-19
Triage decisions during COVID-19 pandemic
Advance directives
Annex 1 - List of participants
Annex 2 - Acknowledgements
Anti-dementia drugs
Involving people with dementia in research through PPI (patient and public involvement)
Participation of people with dementia in clinical trials
Policy on collaboration with other organisations
Disclosure of the diagnosis to people with dementia and carers
Genetic testing
The Hague Convention for the International Protection of Adults
Participation of people with dementia in research
Stem Cell Research
Recommendations on how to improve legal rights and protection of people with incapacity
Glasgow Declaration 2014
Other languages
български
Český
Deutsch
Ελληνικά
Español
Français
Hrvatski
Italiano
Nederlands
Norsk
Polski
Português
Slovenščina
Slovenský
Suomi
Svensk
Türk
Signatories: Individuals
Signatories: Organisations
Signatories: Policy makers
Paris Declaration - 2006
Executive Summary
Public health priorities
Research and medical priorities
Care and social support priorities
Legal and ethical priorities
Ethics
European Dementia Ethics Network
Objectives
Structure
Organisation of work
Working Groups
Dementia Ethics Steering Committee
Definitions and approaches
What is meant by the term ethics?
Medical ethics and bioethics in Europe
The four common bioethical principles
Respect for autonomy
Beneficence and non-maleficence
Justice
Other ethical principles
Solidarity and interdependence
Personhood
Dignity
Cultural issues linked to bioethical principles
Ethical issues in practice
2020: Policy briefing on intercultural care and support
The issue
Background
Key facts
Challenges related to the provision of intercultural care and support
Recommendations
Conclusions – why act now?
Acknowledgements
References
2019: Overcoming ethical challenges affecting the involvement of people with dementia in research
Preface
Introduction
Part 1: Ethical Challenges Linked to Public Involvement
Part 2: Ethical Challenges Linked to Recruitment and to Informed Consent
Part 3: Ethical Challenges during Participation in Research: promoting wellbeing and avoiding harm
Part 4: Ethical Challenges Linked to Involvement after the end of research
References
Appendix 1 – Co-authors and contributors to this paper
Appendix 2 – Glossary
2018: Intercultural care and support
Introduction
Understanding dementia and help seeking
Diagnosis, assessment and treatment.
Support and care
Professional and informal carers
Conclusions
References
Members of the expert working group
Terms and concepts
2017: Dementia as a disability? Implications for ethics, policy and practice
Preface
Introduction
Disability-related terms and definitions
About disability
Personhood and the personal experience of disability
Human rights and opportunities
Care, support, disability and dementia
Working towards an inclusive society
Conclusions
Recommendations
Glossary/list of abbreviations
References
Acknowledgements
Appendix – Translations of impairment and disability
2016: Ethical issues linked to the changing definitions/use of terms related to Alzheimer’s disease
Foreword
Preface
Introduction
The new AD definitions and the ethical implications of the way we represent health and disease
Personal identity and personhood
Ethical issues linked to diagnosis, healthcare and research
Broader ethical issues at the level of society
Conclusion
Our position
Glossary of terms and abbreviations
References
Appendix 1: Acknowledgements
Appendix 2: More information about the changing definition of AD
2015: Ethical dilemmas faced by professionals providing dementia care in care homes and hospitals
Foreword
Introduction
Caring and coping in ethically challenging situations
Vignettes and commentaries
Conclusion
Building an ethical infrastructure – a message to organisations
References/reading list
Acknowledgements
Appendix 1 – Ethical principles, values and related concepts
Appendix 2 – Short examples to describe ethical theories
Appendix 3 – Checklist for reflecting on ethical dilemmas and ethically challenging situations
2014: Ethical dilemmas faced by carers and people with dementia
Foreword
PART 1 - Introduction
About ethics
PART 2 - Ethical dilemmas from the first possible signs of dementia onwards
The period of uncertainty/not knowing (pre-diagnosis)
The process of understanding/finding out (diagnosis)
The initial period of adaptation (shortly after diagnosis)
Living with dementia (getting on with routine life/adapting to challenges)
Caring for/receiving care (when increased levels of support are needed)
The possible transition into a care home (when continued care at home becomes problematic)
Care for a dignified end of life
PART 3 - Tackling ethical dilemmas
Establish and maintain an on-going dialogue involving everyone involved or concerned about the particular issue
Try to understand the issue and seek additional information if needed
Try to make sense of people’s needs, wishes and concerns (i.e. what is really important to them or bothering them)
Consider and evaluate the ethical principles and values at stake in relation to the individuals involved (including yourself) and the specific situa...
Reflect together on possible outcomes which might be good or bad for different people concerned, bearing in mind their lived experiences
Take a stance, act accordingly and, bearing in mind that you did your best, try to come to terms with the outcome
Reflect on the resolution of the dilemma and what you have learnt from the experience
References
Acknowledgements
2013: The ethical issues linked to the perceptions and portrayal of dementia and people with dementia
Preface
Summary/synthesis
Introduction
How dementia is perceived and portrayed
The perception of those who are perceived and portrayed
Concluding remarks
Guidelines
Appendix 1
References
2012: The ethical issues linked to restrictions of freedom of people with dementia
Preface
Introduction
Restriction of the freedom to choose one’s residence or place of stay
Freedom to live in least restrictive environment
The restriction of the freedom to act according to individual attitudes, values and lifestyle preferences
The restriction of the freedom to play an active role in society
Formal acknowledgements and disclaimer
Appendices
Glossary
References
2011: Ethics of dementia research
The dementia ethics research project
Background, definitions and scope
Involving people with dementia
Informed consent to dementia research
Protecting the wellbeing
Risk, benefit, burden and paternalism
Clinical trials
Epidemiological research
Genetic research
Research into end-of-life care
The donation of brain and other tissue
Publication and dissemination of research
Glossary
Annexes
References
2010: The ethical issues linked to the use of assistive technology in dementia care
Background information
AT, ethical issues and legislation
Ethical issues linked to the use of specific forms of AT
Our guidelines and position on the ethical use of AT for/by people with dementia
An ethical framework for making decisions linked to the use of AT
Annexes
Glossary
References
2009: Advance directives and personhood
Critical interests
Personal identity
Subjective experience
Discontinuity of interests
Psychological continuity
Existence over time
Discussion on ethical principles
2008: End-of-Life care for people with dementia
Executive summary and recommendations
Our position and guidelines on End-of-life care
Acknowledgement
Bibliography
Database of initiatives for intercultural care and support
Afro-Caribbean
DemACE (UK)
Albanian
Association Alzheimer Suisse (CH)
Memoni (FIN)
Arabic
MEMONI (FIN)
Alzheimer's Society Resources (UK)
Alzheimer Tea House (NL)
Support for the Arabic-Muslim community (ISR)
DemACE (UK)
Bengali
Alzheimer's Society Resources (UK)
Chinese/Cantonese/Mandarin Chinese
MEMONI (FIN)
Dementia Wellbeing Service (UK)
Alzheimer's Society Resources (UK)
Living well with dementia (UK)
DemACE (UK)
Croatian
Helpline (SWE)
Danish
Helpline (SWE)
English
ETNIMU (FIN)
Living well with dementia (UK)
DemACE (UK)
Helpline (SWE)
Estonian
ETNIMU (FIN)
MEMONI (FIN)
Farsi
Helpline (SWE)
Hindi
Alzheimer's Society Resources (UK)
BME Dementia Forum (UK)
South Asian Dementia Café – Hamari Yaadain (UK)
Living well with dementia (UK)
DemACE (UK)
Indonesian
Stichting Alzheimer Indonesia Nederland (NL)
Irish
Cuimhne: Irish Memory Loss Alliance (UK)
DemACE (UK)
Italian
Doppelt fremd /doublement étranger (CH)
Jewish
Support for ultra-orthodox and also Ethiopian Jews (ISR)
Blog about providing support (UK)
Kurdish/Sorani
MEMONI (FIN)
Live-in (migrant) carers
Alzheimer Uniti Onlus language classes (IT)
Minority ethnic groups (in general), BAME/BME
BME Dementia Forum (UK)
Alzheimer's Society Resources (UK)
National Forum on Ageing and Migration (CH)
Culture Dementia UK (UK)
Fusion Care (ISR)
DemACE (UK)
DemACE Call to Action (UK)
Speaking-up-tool (FIN)
Alzheimer France
Polish
Dementia Wellbeing Service (UK)
Demenz und Migration (DE)
NAKMI flyers (NOR)
DemACE (UK)
Portuguese
Association Alzheimer Suisse (CH)
Punjabi
Dementia Wellbeing Service (UK)
Alzheimer's Society Resources (UK)
BME Dementia Forum (UK)
South Asian Dementia Café – Hamari Yaadain (UK)
DemACE (UK)
Living well with dementia (UK)
Roma, traveller and Bedouin communities
ETNIMU (FIN)
Irish Travellers in Britain (UK)
Support for the Bedouin community (ISR)
Russian/former Soviet Union
ETNIMU (FIN)
MEMONI (FIN)
Demenz und Migration (DE)
EMDA (ISR)
Sami
Muitohallat (FIN)
Serbian
Association Alzheimer Suisse (CH)
Helpline (SWE)
Sikh
Dementia Friendly Gurudwaras (UK)
DemACE (UK)
Somali
ETNIMU (FIN)
MEMONI (FIN)
Dementia Wellbeing Service (UK)
DemACE (UK)
South Asian
Caring for dementia (UK)
South Asian Dementia Café – Hamari Yaadain (UK)
DemACE (UK)
Thai
MEMONI (FIN)
Turkish
Association Alzheimer Suisse (CH)
Demenz und Migration (DE)
Alzheimer Tea House (NL)
NAKMI flyers (NOR)
German-Turkish Alzheimer Twinning Initiative (TUR)
You ask, experts answer (TUR)
Urdu
BME Dementia Forum (UK)
Caring for dementia (UK)
Dementia Wellbeing Service (UK)
Alzheimer's Society Resources (UK)
South Asian Dementia Café – Hamari Yaadain (UK)
NAKMI flyers (NOR)
DemACE (UK)
Research
Clinical Trials Watch
Learn more about clinical trials
Phase II trials
Clinical trials by country
Clinical trials by condition
ABvac40
ACI-24-1801
ACI-35.030 (coming soon)
ALZ-801 (coming soon)
DESPIAD
ETHERAL
GRADUATION (coming soon)
T-817MA
VIVIAD (coming soon)
TRAILBLAZER-ALZ 2 (coming soon)
Ongoing studies but not recruiting participants
Phase III trials
Clinical trials by country
Clinical trials by condition
ANAVEX®2-73-AD-004 (coming soon)
Clarity AD study
LO-MAPT study
NorAD study
17-AVP-786-305 study
Ongoing studies but not recruiting participants
Value of Knowing
Public concerns about Alzheimer's disease
Public attitudes towards people with dementia
Public expectations from policy makers
Public experiences of Alzheimer's disease
Public knowledge of Alzheimer's disease
Public beliefs on existing treatments and tests
Public attitudes about diagnosis
European Collaboration on Dementia
Cost of dementia
The health economical context (Welfare theory)
Health economic aspects of dementia
The impact of informal care
Cost of illness and burden of dementia
Regional/National cost of illness estimates
Prognosis to 2030
Sensitivity analysis
Other European cost of illness estimates
Regional Patterns: The societal costs of dementia in Sweden
Regional patterns: The economic environment of Alzheimer's disease in France
Regional patterns: Economic environment of Alzheimer’s disease in Mediterranean countries
Regional patterns: Socio-economic impact of dementia and resourse utilisation in Hungary
Conclusions and policy implications
Acknowledgements
Diagnosis and treatment of dementia
Assessment
Diagnosis
Psychosocial interventions
Drug treatment for cognitive symptoms
Treatment for behavioural and psychological symptoms of dementia
References
Prevalence of dementia
Prevalence of dementia in Europe
Prevalence of early-onset dementia in Europe
Prevalence of dementia in Eastern Europe
References
Prevention of dementia
Cardiovascular risk factors
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References
Psychosocial interventions
References and conclusions
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Acknowledgements
Social Support Systems
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Acknowledgements
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PharmaCog
What is PharmaCog?
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Academic Partners
Pharmaceutical companies
SMEs, patient group and regulatory authorities
What do the partners bring to the project?
Coordination
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How will PharmaCog benefit patients?
PharmaCog's Scientific Approach
Project Structure
Innovation, translation and harmonisation
Work Packages
Events
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What are the official requirements for carrying out clinical trials in the European Union?
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Continence care
Guidelines
What do we need from service providers and policy makers?
Conclusion
References
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