2018 European Carers' Report: Carers' experiences of diagnosis in five European countries

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This report presents the findings of a study conducted in 2017 by Alzheimer Europe (AE), Bangor University and five AE member organisations on the diagnosis of dementia. The study set out to better understand the experiences of informal carers of receiving a diagnosis of dementia across five European countries: Czech Republic, Finland, Italy, the Netherlands and the UK (Scotland).

The questionnaire included 57 questions addressing; demographics of the carer and person with dementia; the symptoms that were experienced and prompted help-seeking; the pathway through the diagnostic process; the experience of the diagnostic process; support and information offered at the time of diagnosis; emotions experienced immediately after the diagnosis and subsequently; and the carers’ experience of their community as “dementia friendly”.

Alzheimer Europe (2018). European Carers’ Report 2018: Carers’ experiences of diagnosis in five European countries. ISBN 978-999959-995-2-0, Luxembourg, Alzheimer Europe