This report addresses some of the main ethical issues linked to carrying out dementia research in an ethical manner. In producing this report, the multidisciplinary working group had three main objectives, namely to provide an overview of past and current ethical debates about issues linked to various aspects of dementia research, to explain its position and to provide recommendations, where possible, on a range of issues linked to dementia research. The report covers all kinds of research in the medical and social science domains and is targeted at researchers and anyone with an interest in ensuring that dementia research is carried out in ethical manner (e.g. those commissioning or funding research, ethics committees and Alzheimer associations). We feel that it might also be of interest to many people taking part in research (i.e. including people with dementia). Although the format is rather dense, it is clearly divided up into numerous short sections.
2011 Alzheimer Europe Report: The ethics of dementia research
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