COVID-19 resources

In order to support people with dementia, carers, are professionals and national Alzheimer's associations during the ongoing COVID-19 pandemic, Alzheimer Europe has put together a range of valuable online resources with helpful information, tips and guidance.

We will continue to closely monitor the situation and also include relevant news developments for people with dementia and their carers in the COVID-19 section of our newsletter:

https://www.alzheimer-europe.org/news

With the coronavirus still widespread across European countries, various restrictions have been put in place ranging from the closure of important services such as day care or respite care to the prohibition of visits to nursing and old people's homes. This situation and some of these restrictions also adversely affect people with dementia and their carers. Since the start of the pandemic, we have published position papers on the following topics:

To support carers and associations providing support and help for people with dementia in these difficult times, Alzheimer Europe has collected a number of resources which we hope will prove useful.

The long list of resources that have been gathered bears testament to the important and invaluable work provided by national Alzheimer's associations and government agencies during the COVID-19 pandemic.

We have broken down these resources into the following categories and will update these pages on a regular basis:

1. Information for people with dementia 4. National resources 7. COVID-19 statistics and trackers
2. Information for caregivers and families 5. EU resources 8. COVID-19 and ethics
3. Information for minority ethnic groups 6. Global resources 9. COVID-19 and intellectual disabilities
    10. COVID-19 and mental health 

 

Information for people with dementia

 

The Alzheimer Society of Ireland

Tips for vulnerable adults

COVID-19 vaccination: what to expect (a leaflet for people with dementia and their families/supporters)

UK Alzheimer’s Society

Information for people living with dementia

5 online activity ideas for people living with dementia

5 ways to keep active for people living with dementia

Vaccines for coronavirus (COVID-19)

Alzheimer Scotland

Guidance for people with dementia and carers

Connecting people, connecting support

Resources and activities for living well with dementia

Age UK

guidance on using video calling to keep in touch

Understand Together Campaign 

At Home Activities: meaningful activities for PWD, families and carers

IDEAL programme: improving the experience of dementia and enhancing active life

How to stay well during the COVID-19 pandemic: 5 key messages for people living with dementia

 

Resources in languages other than English

 

Alzheimer Nederland

Frequently asked questions on COVID-19 and dementia (in Dutch)

Frequently asked questions about the coronavirus vaccination (in Dutch)

France Alzheimer

Advice on measures to manage social isolation for people affected by dementia (in French)

Federazione Alzheimer Italia

10 recommendations for managing social isolation, for people living with dementia and their families (in Italian)

Austrian Dementia Strategy

Useful organisations and links (in German)

StimulusPro

App for cognitive stimulation (licence-free; in Spanish)

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Information for caregivers and families

 

The Alzheimer Society of Ireland

Tips for supporting vulnerable adults in the community

At-home activities and apps for people with dementia

UK Alzheimer’s Society

Staying safe from coronavirus and reducing the risk of infection

COVID-19 symptoms in older people and people with dementia

Vaccines for coronavirus (COVID-19)

Understand Together Campaign (Alzheimer's Society of Ireland)

At Home Activities: suggestions for PWD, families and carers

Connecting people, connecting support (Alzheimer Scotland)

Resources and activities for living well with dementia

UK National Health Service (NHS)

Guide to dementia wellbeing in the COVID-19 pandemic: a resource for healthcare professionals, carers and people with dementia

Alzheimer’s Association

Tips for dementia caregivers

Dementia Services Information and Development Centre

Resources to help caregivers with social isolation

Dementia Carers Count

Virtual Carers Centre - resources to support family carers of people with dementia

Meri Yaadain - BAME Dementia

Leaflet on maintaining faith-based practices for a relative living with dementia during Ramadhan

World Health Organisation

iSupport resources for caregivers of people with dementia

Resources in languages other than English

France Alzheimer

Advice for carers and caregivers during the COVID-19 pandemic (in French)

Federazione Alzheimer Italia

10 recommendations for managing social isolation, for people living with dementia and their families (in Italian)

Alzheimer Uniti Italia

Videos with advice on managing social isolation from the Comunita Amichevole of Alzheimer Uniti Italia (in Italian)

Dutch Dementia Friends

Advice on how to support people affected by dementia during the COVID-19 pandemic (in Dutch)

Slovenian Alzheimer’s Society

Tips for caregivers (in Sovenian)

Confederacion Espanola de Alzheimer (CEAFA)

Documents and infographics for the families of people with dementia (in Spanish)

Austrian Dementia Strategy

Useful organisations and links (in German)

Spanish Neurology Society

Advice for caregivers of people with dementia (in Spanish)

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Information for minority ethnic groups

 

Public Health England guidance on social distancing

In Arabic

In Bengali

In Cantonese (traditional Chinese)

In French

In Gujarati

In Mandarin (simplified Chinese)

In Polish

In Portuguese

In Punjabi

In Urdu

In Welsh

Resources from the Turkish Alzheimer's Association (in Turkish)

Meri Yaadain CiC COVID-19 resources for BAME communities

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National resources

 

We have collected resources on COVID-19 from different countries represented by our member organisations, which are listed below. Please click on the country of interest in the list below to navigate directly to it. 

 

Austria France Luxembourg Slovakia
Belgium Germany Malta Slovenia
Bosnia-Herzegovina Greece Montenegro Spain
Croatia Hungary Netherlands Sweden
Cyprus Iceland North Macedonia Switzerland
Czech Republic Ireland Norway Turkey
Denmark Israel Poland United Kingdom: England, N.Ireland & Wales
Estonia Italy Portugal United Kingdom: Scotland
Finland Jersey Romania  

 

 

 

 

 

 

 

Austria

Austrian Federal Ministry for Social Affairs, Health, Care and Consumer Protection:

Belgium

Belgian Government

Expertisecentrum Dementie Vlaanderen

Bosnia Herzegovina

Udruženje AiR

Bosnian Government

Croatia

Alzheimer Croatia

Government of the Republic of Croatia

Croatian Medical Association

Cyprus

Cyprus Ministry of Health

Czech Republic

Czech Republic Ministry of Public Health

Denmark

Alzheimerforeningen

Danish Health Authority

Estonia

Estonian Government and Health Board

Finland

Finnish Institute for Health and Welfare

France

France Alzheimer

French Government

Germany

Deutsche Alzheimer Gesellschaft

German Ministry of Health

Greece

Greek Ministry of Health

Hungary

Hungarian Government

Iceland

Iceland Ministry of Health

Icelandic Directorate of Health COVID-19 information center

Ireland

The Alzheimer Society of Ireland

Irish Department of Health

Israel

Israeli Ministry of Health

Italy

Federazione Alzheimer Italia

Alzheimer Uniti Italia Onlus

Videos with advice on managing social isolation from the Comunita Amichevole of Alzheimer Uniti Italia (in Italian)

Ministry of Health

Interim guidance for the appropriate support of people with dementia in the current COVID-19 pandemic scenario (in Italian)

Jersey

Jersey Alzheimer’s Association

Information and Public Services for the Island of Jersey

Luxembourg

Luxembourg Health Ministry

Malta

Ministry for Health

Montenegro

Government of Montenegro – COVID updates

Netherlands

Alzheimer Nederland

Government of the Netherlands

North Macedonia

Ministry of Health

Norway

Norwegian Health Association

Norwegian Directorate of Health

Poland

Government of Poland

Portugal

Alzheimer Portugal

Romania

Ministry of Internal Affairs

Slovakia

Ministry of Foreign and European Affairs of the Slovak Republic – Regional Public Health Authority

Slovenia

Spomincica

Ministry of Health

Spain

CEAFA

Fundación Alzheimer España

Spanish Ministry of Health

Sweden

Public Health Agency of Sweden

Switzerland

Swiss Federal Office of Public Health

Turkey

Turkish Alzheimer Society

Ministry of Health

United Kingdom – England, Northern Ireland and Wales

Alzheimer’s Society

UK Government

United Kingdom - Scotland

Alzheimer Scotland

Scottish Government

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European Union resources

European Commission

European Parliament

European Council

European Centre for Disease Prevention and Control

COVID-19 situation updates, news, resources and reports

ECDC resources on COVID-19 vaccination

Re-open EU: information on measures in place in EU member states, including requirements for travellers

European Medicines Agency

Information on treatments and vaccines for COVID-19:

Responses by and resources from European Organisations (A-Z)

Age Platform Europe

Eurocarers

European Academy of Neurology

EANcore resource center on COVID-19

European Consumer Association - BEUC

Country-specific advice for consumer groups

European Disability Forum

Human Rights Report 2021: impact of COVID-19 on people with disabilities

European Geriatric Medicine Society

European Health Management Association

European Patients' Forum

European Psychiatric Association

Federation of European Academies of Medicine

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Global resources

 

Organisation for Economic Cooperation and Development (OECD)

Coronavirus resource platform

World Health Organization (WHO)

WHO COVID-19 Resource Centre

WHO, EU commission and health observatory COVID-19 health systems response monitor 

Inter-Agency Standing Committee (IASC)

COVID-19 outbreak readiness and response

My hero is you: storybook for children on COVID-19

United Nations (UN)

UN Resource Center

Policy Brief: the impact of COVID-19 on older persons

International Monetary Fund (IMF)

IMF COVID-19 Hub

IMF vaccines supply tracker

Policy responses to COVID-19: country tracker

 

Responses by and resources from International Organisations (A-Z)

Alzheimer's Association

Tips for dementia caregivers

Tips for dementia caregivers in long-term or community-based settings

Virtual and in-home activities for people with dementia, caregivers and others

Information about COVID-19 vaccination for people with dementia and their caregivers

Alzheimer's Disease International

Dementia Alliance International

Dementia Australia

Tips for people living with dementia

Tips for carers, families and friends of people living with dementia

International Disability Alliance

COVID-19 and the disability movement

touchNEUROLOGY COVID HUB

Scientific & clinical research resources

New England Journal of Medicine COVID-19 Resource Centre

The Lancet COVID-19 Resource Centre

International Long-Term Care Policy Network

BBMRI-ERIC: resources from European biobanks for research on COVID-19

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COVID-19 statistics and trackers

 

European Centre for Disease Prevention and Control

World Health Organisation Coronavirus Disease Dashboard

Our World in Data Coronavirus data tracker

Johns Hopkins Coronavirus Resource Center Interactive Map

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COVID-19 and ethics

 

In light of the current COVID-19 pandemic and the potential for rationing of intensive care services due to resource scarcity, we have published a position statement on the triage of patients in the context of access to intensive care services.  Our position statement can be found here:

International & European Organisations

Council of Europe

Committee on Bioethics (DH-BIO) COVID-19 webpage

Statement on Human Rights considerations relevant to the COVID-19 pandemic

Directorate General of Human Rights and Rule of Law: webpage on the impact of COVID-19 on human rights and rule of law

European Union Agency for Fundamental Rights

Fundamental Rights implications of COVID-19

European Organisation for Rare Diseases

Statement on critical care guidelines during COVID-19 pandemic

Johns Hopkins Berman Institute of Bioethics

New England Journal of Medicine - Ethical perspectives

Fair allocation of scarce medical resources in the time of COVID-19 (EJ Ezekiel et al)

Nuffield Council of Bioethics

COVID-19 resources

World Health Organisation

Ethical standards for research during public health emergencies: distilling existing guidance to support COVID-19 R&D

Guidance for managing ethical issues in infectious disease outbreaks

  • https://apps.who.int/iris/handle/10665/250580

Addressing human rights as key to the COVID-19 response

World Medical Association

Statement on medical ethics in the event of disasters

 

National Organisations and Associations

 

Belgian Society of Intensive Care Medicine

Ethical principles concerning proportionality of critical care during the COVID-19 pandemic in Belgium

British Medical Association

Guidance note on COVID-19 ethical issues

Deutsche Ethikrat (Germany)

Solidarity and responsibility during the COVID-19 pandemic

Comité Consultatif National d’Ethique (France)

Ethical reflections from the CCNE during the COVID-19 pandemic

Ethical reflections on COVID-19 vaccination from the CCNE 

Espace Ethique Région Ile-de-France (France)

COVID-19 Observatory on Ethics and Society

Ethics and decision-making in the intensive care setting

Irish Department of Health (Ireland)

Ethical Framework for Decision-Making in a Pandemic

Commission Nationale d'Ethique (Luxembourg)

Position statement on ethical standards for referring patients in situations of limited clinical resources due to the COVID-19 pandemic

Swiss Academy of Medical Sciences

Guidance on triage for intensive care treatment under resource scarcity during the COVID-19 pandemic (available in english, french, german and italian)

Guidance on palliative care for elderly and frail patients during the COVID-19 pandemic (available in english, french, german and italian)

 

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COVID-19 and intellectual disabilities

 

Inclusion Europe

COVID-19 resources

5 steps to prevent harm to people with intellectual disabilities and their families

National Down Syndrome Society (US)

COVID-19 resource center

COVID-19 resources for caregivers

Q&A on COVID-19 and Down Syndrome

National Task Force on Intellectual Disabilities and Dementia Practices

Q&A on COVID-19 and Down's Syndrome (abbreviated and long versions, in English and Spanish)

MENCAP

Information and resources on COVID-19

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COVID-19 and mental health 

 

World Health Organisation

Interim Briefing Note Addressing Mental Health and Psychosocial Aspects of COVID-19 Outbreak (by the Inter-Agency Standing Committee’s Reference Group on Mental Health and Psychosocial Support)

Mental health and Psychosocial Considerations During COVID-19 Outbreak

#HealthyAtHome campaign - mental health tips and advice

United Nations

Policy Brief: COVID-19 and the Need for Action on Mental Health

Public Health England

Guidance on mental health & wellbeing during the COVID-19 pandemic

European Psychiatric Association

COVID-19 Resource Center

UK National Health Service (NHS)

Every mind matters campaign: 10 tips to help if you are worried about coronavirus

Madrid College of Psychologists

COVID-19 mental health resources (in spanish)

Fingerprint for success

Remote work burnout: stats and solutions

 

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