Past EWGPWD supporters

Carol Hargreaves

Carol joined the Scottish Dementia Working Group in 2013 and became Vice Chair in 2017. In joining the group, Carol felt like she was doing something positive with her life and she loves working with other people, having fun and learning new things. Carol enjoyed being part of the European Working Group and using her knowledge and experiences to influence at a European level. She joined the EWGPWD in October 2016 and was nominated by Alzheimer Scotland again for the 2018-2020 term.

Amela Hajric

Amela Hajric was nominated by Udruženje AiR (Bosnia and Herzegovina) for the group's 2016-2018 term and again for 2018-2020.

Nina Baláčková

Nina Baláčková was born in 1958 in Prague, Czech Republic, where she has lived all her life. She studied at the Economics School and has worked as an accountant. Nina was diagnosed with Alzheimer’s disease in 2007. Shortly thereafter, she decided to help publicise information about dementia to more people. Nina was nominated by the Czech Alzheimer's Society to join the EWGPWD in October 2012, serving until 2018, and was the group's Vice Chairperson in 2013-2014. She was re-nominated and returned to the group as a member from January 2020 until October 2020.

Thomas Maurer

Thomas Maurer was nominated in 2018 by Association Alzheimer Suisse.

Miha Kastelic

Miha Kastelic is from Ljubljana, Slovenia, but has lived in the Czech Republic since 2008. Miha spent many years working in the cleaning business working on different regional sales and marketing positions. He travelled all over Europe for many years and spent a lot of time with sales teams working on many hygiene projects for key clients. In December 2017, Miha was diagnosed with early onset Alzheimer's disease. He joined the EWGPWD in October 2018, nominated by the Czech Alzheimer Society. Miha left the group in December 2019.

Helga Rohra

Helga Rohra was born in 1953. She trained as an interpreter and speaks six languages.
She received a diagnosis of Lewy body dementia in 2008 and has actively advocated for the rights of people with dementia ever since. In 2010, her book “Stepping out of the shadow” was published in Germany and Romania. She has since made many public appearances to raise awareness of dementia.
She was the first Chairperson of the EWGPWD, and served in this position for two consecutive terms, 2012-2014 and 2014-2016.
Helga was nominated by the German Alzheimer Association DAlzG in 2012, 2014 and 2016.

Karin Gustafsson

Karin Gustafsson was diagnosed with Alzheimer's disease in 2014 and celebrated her 65th birthday at the end of 2015.
She lives in Gothenburg, Sweden with her husband and their three children and eight grandchildren. She pursued a career in education, starting as a pre-school teacher and later becoming a Doctor of Pedagogy.
Karin was nominated by Alzheimer Sverige. She served on the EWGPWD during 2016-2018.

Alv Orheim

Alv was born in 1947 in Bergen, Norway. He holds an MSc in Economic Geology from the Norwegian University for Science and Technology in Trondheim. He worked in coal mining and petroleum exploration for 35 years, with the last 10 years as an independent consultant.
Alv was diagnosed with Vascular Dementia in 2009. He joined the Norwegian Working Group for People with Dementia in 2014 and the EWGPWD in 2015.
Alv was nominated by Nasjonalforeningen for folkehelsen, the Norwegian Association for Health.
He was a Vice-Chairperson of the group from October 2016 to December 2017.

Stig Atle Aavik

Stig Atle Aavik was born in 1959 in Stockholm, Sweden of Norwegian parents. He studied at the Norwegian Army Academy and earned a Master’s degree from the Norwegian School of Business Administration in 1994. Stig has three children and is an avid cross-country skier.
He was diagnosed with Alzheimer’s disease on 1 May 2012 and joined the European Working Group of People with Dementia in October of the same year.
Stig was nominated by Nasjonalforeningen Demensforbundet. He served on the EWGPWD during 2012-2014.

Hilary Doxford

In December 2012, at the age of 53 Hilary was diagnosed with early onset Alzheimer's Disease. She is keen to do all she can to assist in finding a cure for dementia and volunteers for the Alzheimer’s Society in England as part of their research network and user involvement programme.
She is still working and intends to continue working for as long as possible to show that people with dementia can still make a valuable contribution to their organisation.
Hilary is also a member of the World Dementia Council, and indeed was the first person living with dementia to join, in January 2015.
At home she enjoys anything to do with archaeology and she and her husband love the sea and walking their dog Tilly.
Hilary was nominated by the Alzheimer's Society. She joined the EWGPWD in October 2014 and served as a Vice-Chairperson until 2016.

Jean-Pierre Frognet

Jean-Pierre was diagnosed with Alzheimer's disease in 2007 and joined Belgium’s Ligue Nationale Alzheimer Liga to find out more about his condition. The Ligue nominated him as a member of the EWGPWD, on which he served from 2012 to 2014 and was elected as Vice Chairperson in 2013.
He was very active in the group and also participated in Alzheimer Europe’s annual conferences in Malta (2013) and Glasgow (2014). He was particularly keen to see more services for younger people with dementia, so they can remain active for a longer time.
Jean-Pierre passed away on 7 April 2016.

Raoul Grönqvist

Raoul Grönqvist was born in 1951 in Helsinki, Finland. He is a tribologist and a Doctor of Technology and speaks four languages. He likes to play classical guitar and also enjoys walking his poodle.
He was diagnosed with Alzheimer’s disease and dementia with Lewy bodies at the age of 60 and hopes that his work experience will help him contribute to the work of the EWGPWD and consequently help other people with dementia. He is also part of a self-support group in Finland.
Raoul was nominated by Muistiliitto and served on the EWGPWD during 2012-2016.

Agnes Houston

Agnes was diagnosed with Early Onset Alzheimer’s Dementia in 2006 at the age of 57.
She is an active member and Former Chair of the Scottish Dementia Working Group. Agnes has a long track record of campaigning for best practice and improving lives of people with dementia, in Scotland and abroad. She is also a board member of Dementia Alliance International.
In 2016, she was awarded a Churchill Fellowship to conduct research on sensory challenges faced by people with dementia.
Agnes was nominated by Alzheimer Scotland. She joined the EWGPWD in 2012 and served as Vice-Chairperson of the group until 2016.

Ingegerd Pousard
Ingegerd Pousard was born in March 1941 in Östersund, Sweden. She has three daughters and spent most of her working life as a doctor’s secretary.
In May 2008 she received a diagnosis of dementia. Since then, together with her family, she has tried to understand a life with Alzheimer’s disease. Ingegerd is particularly interested in discovering and sharing new information about dementia. In 2012, she was elected as a member of the EWGPWD.
Ingegerd was nominated by Alzheimerföreningen i Sverige. She served on the EWGPWD during 2012-2014.
Dermod Slevin
Dermod was born on March 3rd 1940. He was born and reared in Donnybrook in Dublin. Dermod spent 35 years working for the national broadcaster RTÉ as a technician, involved in the installation of broadcasting equipment throughout the country. He took early retirement and opened a coffee shop in Donnybrook, but due to unfortunate circumstances was forced to give this up. Dermod enjoyed travel over the years and visited Spain, Thailand, Cambodia and Norway. He was diagnosed with Lewy Body Dementia in 2010 at the age of 70. In 2012, he became Ireland’s representative on the European Working Group of People with Dementia.
He was nominated by the Alzheimer Society of Ireland and served on the EWGPWD during 2012-2014.
Dermod passed away on 29 January 2018.
Rozel Snell
Rozel was born in 1944 in Southampton and grew up in Jersey.
She is diagnosed with both Alzheimer's and Parkinson’s diseases. Her visit to the 2012 Alzheimer Europe Conference was a wonderful experience: being able to stand up and speak about her condition without fear was an experience she has never felt before.
Rozel has three sons and lives at home with her husband Brian - without whom she admits life would be quite difficult.
Rozel was nominated by the Jersey Alzheimer's Association and served on the EWGPWD during 2012-2015.
Bojan Španja
Bojan was born in June 1955 in Ljubljana, Slovenia. He trained as a systems engineer and worked for 20 years in the computer department of a big company. In 1996, he established his own company and successfully developed and sold computer software for 13 years.
He has always been an avid sportsman and angler, as well as a motorsports fan. Bojan was diagnosed with Alzheimer's disease in 2010 and became a member of the EWGPWD in 2012.
Bojan was nominated by Alzheimer Slovenija and served on the EWGPWD during 2012-2015.
Daphne Wallace
Daphne Wallace was born in 1940. She spent most of her childhood in Scotland but then moved with her family to southern England. She studied Medicine at the University of St Andrews and specialised in Psychiatry. Daphne initially worked with people with mental retardation but then changed to care of the elderly: she was notably involved in setting up services for older people in Leeds. She retired in 2000 and was also a Trustee of Alzheimer's Society UK for 12 years. In 2005, Daphne was diagnosed with vascular dementia. Since then, she has campaigned for the rights of people with dementia and has been involved in research projects related to the rights and care of people with dementia. Since October 2012, she represents the Alzheimer's Society UK on the European Working Group of People with Dementia.
Daphne was nominated by the Alzheimer's Society. She served on the EWGPWD during 2012-2014.