Alzheimer Revolution (Italy)

Contact details

Name of organisation/inidvidual

Maria Teresa Ferretti

Address

Lainzerstrasse 8a/19
1130 Vienna
Austria

Telephone

0043 6781261080

E-mail

Mariateresa.ferretti@gmail.com

Website

https://www.edizionimondonuovo.com/catalogo/alzheimer-revolution/


Description

We are afraid of what we do not understand – knowledge is therefore a tool to overcome our fears. This little book provides rigorous knowledge and hope.  Often the diagnosis of Alzheimer is surrounded by fear and stigma. The general sense is that this is a disease of which even doctors have no clue, and no solution is in sight. As a consequence, not just fear but also a sense of shame often accompanies patients and caregivers, as if there was guilt in the disease. But there is a lot that we, in the scientific community, do know about Alzheimer.

I have worked for over 15 years as a researcher in this field and I know that things are changing, for the best. From a disease that was diagnosed based on clinical signs as ‘probable’, we are moving into an era of biomarker-based diagnosis, prevention medicine is growing, precision medicine is coming and medicine is more and more involving patients and novel technologies to make earlier and more precise diagnosis. For me, a revolution – as we learn more about Alzheimer, we are developing the tools to defeat it. Unfortunately, the big advances of the scientific community are in most cases not known to the large public.

The book is meant to make such big, momentous research findings of the past 20 years accessible to lay public, in particular family members of people living with Alzheimer. This paperback book aims at giving clarity, explaining the basic concepts and removing the aura of mystery and fear that surrounds dementia. It explains in very easy terms the difference between Alzheimer and dementia, dementia’s natural history, how genetics plays a role, how biomarkers are revolutionizing its diagnosis, as well as the advent of novel technology and a more patient-centric approach in medicine. The hurdles but also hopes of immunotherapy and other potential drugs are also presented. 

In the end, Alzheimer is a disease like any other and with the collective effort of the scientific community, working together with patients and family members, we will eventually be able to control it. By explaining the basic facts behind dementia and highlighting the crucial role of caregivers even in research, the book removes stigma, provides a positive image of people living with dementia and caregivers, and sends a message of hope. A small paperback that can be easily carried around, consulted when needed and shared to spread its optimism.

Website

 https://www.edizionimondonuovo.com/catalogo/alzheimer-revolution/

 

Acknowledgement
Alzheimer Europe gratefully acknowledges the support of the sponsors of the Alzheimer Europe anti-stigma award: Alzheimer Europe Foundation, Biogen, Lilly and Roche.
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