On 15 February, members of the PROMINENT Public Involvement Board met online. Also participating in this meeting were partners of the PROMINENT project: Jyrki Lötjönen (Combinostics), Lena Sannemann (University of Cologne), Ange Bradshaw and Daphné Lamirel (Alzheimer Europe). Attendees discussed the ‘patient reports’, that are part of the Clinical Decision Support System developed in PROMINENT. These reports are aimed at patients and those accompanying them to memory clinics (e.g. a partner or relative). They present, in an accessible format, information about a patient’s diagnosis, exam results, eligibility for new disease-modifying therapies and other avenues to find support.
The memory specialists will provide these reports, in printed form, to their patients to take home after an in-person appointment. The members of the PROMINENT Public Involvement Board include people with different types of dementia, with MCI as well as relatives and carers of people with dementia. During the meeting, they gave very insightful feedback on the design, layout and content of the reports and on how to make these more understandable and helpful to people. New versions of the patient reports will be developed based on the group’s input.